Disney and Starlight Host a Spidey-Themed Delivery Event and Early Premiere Screening of Season Two of ‘Marvel’s Spidey and his Amazing Friends’ at Texas Children’s Hospital
Cast Member Armen Taylor (Voice of Hulk) Surprised Patients With a Special Appearance
HOUSTON /PRNewswire/ — Disney and the nonprofit Starlight Children’s Foundation teamed up at Texas Children’s Hospital to host a Spidey-themed delivery event to celebrate the launch of “Marvel’s Spidey and his Amazing Friends,” season two. A highlight of the celebration was the opportunity for hospitalized patients and their families to be among the first in the United States to enjoy a pre-screening of the first episode of the hit series’ new season, which officially launches Aug. 19 on Disney Channel and Disney Junior. Cast member Armen Taylor (voice of Hulk) made a special appearance at the event to meet with patients and their families.
In addition, the group distributed “Marvel’s Spidey and his Amazing Friends”-themed toys, activity packs and books. Patients took photos with their families, physicians and nurses in front of a large backdrop featuring characters from “Marvel’s Spidey and his Amazing Friends” to commemorate the special day.
“Today was a different experience versus our normal hospital visits,” said Brenna Stelly, whose child, Everly, enjoyed the Disney experience. “This opportunity allowed her to see that hospitals can be fun. It’s not always about her diagnosis, it can be about her happiness as well.”
“We’re incredibly grateful for the longstanding relationship with Disney and the generous donation of ‘Marvel’s Spidey and his Amazing Friends’-themed products,” said Adam Garone, CEO of Starlight Children’s Foundation. “Delivering fun experiences like this today help hospitalized kids forget about their illnesses for just a moment and rediscover the joy of childhood.”
“At Starlight, transforming the hospital stay is core to our mission of delivering happiness to seriously ill kids and their families. Thank you to Disney and Texas Children’s Hospital for the support in creating this positive experience that patients will carry with them long after they leave the hospital,” Garone added.
“Our Texas Children’s physicians and staff were delighted to watch the joy and excitement on the faces of our hospitalized patients as they reveled in this unique Disney visit,” said Tabitha Rice, executive vice president of Texas Children’s Hospital. “Thanks to Texas Children’s established relationship with Disney and support from Starlight Children’s Foundation, our patients and their families experienced pure Disney joy — a most welcome reprieve from the many stresses that can accompany a child’s hospital stay.
The event was part of Disney’s 2018 commitment of $100 million to help children’s hospitals reimagine the patient experience and deliver joy when it’s needed most. In 2018, Disney chose Texas Children’s as the very first children’s hospital in the nation to pilot its pediatric hospital initiative, created to help reimagine the patient and family experience. This special program helps ease the fear and anxiety of a hospital stay by bringing the wonder of Disney stories to patients and families through the transformation of hospital spaces with imaginative installations such as interactive murals and digital displays; creating personalized moments by delivering Disney-themed Starlight Hospital Wear, care packages and products; and providing complimentary access to Disney+ and special screenings of newly released movies. Texas Children’s staff also receive colorful employee badges featuring beloved Disney characters with the goal of providing joy and comfort to patients and their families during appointments. To help transform patients’ hospital stays into memorable Disney-inspired experiences, Texas Children’s team members also receive in-person training.
This Summer, Disney teamed up with Starlight Children’s Foundation to deliver packages filled with a variety of “Marvel’s Spidey and his Amazing Friends” products, including books, toys and activity packs, to children’s hospitals across the country.
According to Garone, the child life team at partner hospitals provide Starlight’s state-of-the-art programs as distraction tools to help young patients get through the pain and stress of serious illnesses and hospitalization. Starlight offers its programs — including Starlight Gaming, Starlight Hospital Wear and Starlight Deliveries of toys and games — free of charge to over 800 hospitals and healthcare facilities in the U.S.
Community members can also play a part in transforming hospital moments for seriously ill children. To learn more, visit starlight.org/disney.
“Marvel’s Spidey and his Amazing Friends” — which recently was picked up for a third season and is the No. 1 most-watched new preschool series among boys aged 2-5 — has amassed over 383 million views across Disney Junior and Marvel HQ YouTube channels since its August 2021 launch.
About Starlight Children’s Foundation
Starlight Children’s Foundation is a 501(c)3 organization that delivers happiness to seriously ill or injured children and their families. Since 1982, Starlight’s ground-breaking and innovative programs, like Starlight Virtual Reality, Starlight Hospital Wear, and Starlight Gaming, have impacted 21 million kids at more than 800 children’s hospitals across the U.S.
About Texas Children’s Hospital
Texas Children’s Hospital, a not-for-profit health care organization, is committed to creating a healthier future for children and women throughout the global community by leading in patient care, education and research. Consistently ranked as the best children’s hospital in Texas, and among the top in the nation, Texas Children’s has garnered widespread recognition for its expertise and breakthroughs in pediatric and women’s health. The hospital includes the Jan and Dan Duncan Neurological Research Institute; the Feigin Tower for Pediatric Research; Texas Children’s Pavilion for Women, a comprehensive obstetrics/gynecology facility focusing on high-risk births; Texas Children’s Hospital West Campus, a community hospital in suburban West Houston; and Texas Children’s Hospital The Woodlands, the first hospital devoted to children’s care for communities north of Houston. The organization also created Texas Children’s Health Plan, the nation’s first HMO for children; Texas Children’s Pediatrics, the largest pediatric primary care network in the country; Texas Children’s Urgent Care clinics that specialize in after-hours care tailored specifically for children; and a global health program that’s channeling care to children and women all over the world. Texas Children’s Hospital is affiliated with Baylor College of Medicine. For more information, go to www.texaschildrens.org. Get the latest news by visiting the online newsroom and Twitter at twitter.com/texaschildrens.
SOURCE Texas Children’s Hospital
National Poll: Some parents may not be making the most of well child visits
While many parents regularly take children to checkups, some may consider more proactive steps to make them as productive as possible.
Newswise — While most parents and caregivers stay on top of scheduling regular checkups for their kids, they may not always be making the most of them, a national poll suggests.
Most parents report their child has had a well visit in the past two years and two thirds say they always see the same provider, according to the C.S. Mott Children’s Hospital National Poll on Children’s Health at University of Michigan Health. However, fewer parents took all recommended steps to prepare themselves and their kids ahead of time.
“Regular well visits mean guaranteed face time with your child’s doctor and an opportunity to not only discuss specific concerns and questions about your child’s health but get their advice on general health topics like nutrition, sleep and behavior,” said Mott Poll co-director Sarah Clark, M.P.H. “We were pleased to see that the majority of parents regularly make these appointments and maintain relationships with a trusted provider. But they may not always be taking a proactive approach to ensuring they address all relevant health concerns impacting their child’s physical, emotional and behavioral health at every visit.”
In advance of well visits, a fourth of parents say they often prepare a list of questions to ask the provider, while a little over half said they sometimes wrote things down and about a fifth said they never do.
Meanwhile, about a fifth of parents say they often write down information about their child’s health changes while half say they sometimes take this step and three in 10 don’t do this at all.
“Well visits are busy, and in the moment, it’s easy for parents to forget to bring up questions or concerns with a doctor,” Clark said. “Writing them down ahead of time will help prioritize topics and help you get the most out of the appointment.”
Less than 15% of parents say they often research information online to discuss with the provider, while about half sometimes do and 38% never do.
“We are constantly learning new information that may impact children’s health and some recommendations may evolve or be updated,” Clark said. “Many pediatricians and care providers will bring these topics up themselves but not always. It’s always helpful for parents to do some homework ahead of time to make sure they’re aware of any timely topics affecting their child’s age group.”
Preparing children for the visit
Two in five parents say they often take steps to prepare their child for an upcoming well visit by addressing any fears they may have while slightly more than that sometimes do this while a little less than one in five never do this. A fourth of parents often also offer rewards for cooperating while less than half sometimes use such incentives.
For parents of children aged 6-12, a little more than one in five also regularly ask the child to think about questions for the provider.
“As kids approach puberty, their bodies begin changing. A well visit is a great opportunity to have the provider explain why these changes happen,” Clark said. “Having kids think about health topics themselves is also good practice for when they get older and parents become less involved with health visits. Preparing for this transition early will benefit them when they need to take more ownership of their health.”
Most parents also recall completing questionnaires and checklists about their child at well visits. Among these parents, the majority say they understand the purpose but just about three fourths say they receive feedback about how their child is doing.
“Children and their families are more often getting questionnaires at visits to help identify issues like sleep problems, challenges impacting emotional health and behavioral health concerns,” Clark said. “But when time is short, this may not come up during the actual visit. It’s important parents have conversations with providers about any issues that may surface from the child’s or family’s responses.”
Seeing providers familiar with your child’s history
Nearly half of parents say they schedule well visits with their child’s regular provider even if they have a long wait for an appointment. A third of parents also strongly agree their child is more likely to follow advice if it comes from a provider their child knows well.
For their child’s most recent well visit, more than half of parents also rate the provider as excellent for knowing the child’s health history, answering all their questions and giving recommendations that are realistic for the family.
A primary care physician familiar with a child and their specific health history will help them stay healthy, prevent disease and illness by identifying risk factors and taking the right steps to manage chronic disease care, Clark says.
“We know that continuity with the same provider has long term health benefits for children. Parents polled whose child always sees the same provider for well visits are also more likely to rate the provider as excellent,” Clark said. “Nurturing a relationship with a primary care provider means that the health professional who knows your child best is the one providing individualized care and helping your family navigate important decisions impacting their health.”
However, when well visits are scheduled with a different provider, either by choice or necessity, “parents may benefit from different explanations or perspectives on their child’s health,” Clark added.
The nationally representative report is based on responses from 1,331 parents with children aged 1 to 12 years who were polled in August-September 2022.
Five ways to ensure the most productive well child visit, according to Mott experts:
- Build a long-lasting trusted relationship with the same primary care provider who your child always sees for appointments, which may include a pediatrician, other family physician or nurse practitioner.
- Write down questions regarding your child’s physical, emotional and behavioral health in the same place as they come up to review again when a child is due for a well visit.
- Share input from teachers or daycare providers about the child’s behavior or school performance and ask the primary care provider for the need for further assessment or therapy.
- Prepare children for the visit. If there’s a physical exam, talk them through what to expect. For young children who need immunizations or blood draws, prepare them with books ahead of time, consider comfort positions and distractions like cartoons on screens during shots or give them something fun to look forward to after the visit like ice cream. Never promise them they won’t get a shot. More tips here.
- For older children, help them come up with a list of questions to ask the doctor themselves.
FDA Announces Action Levels for Lead in Categories of Processed Baby Foods
Today, the U.S. Food and Drug Administration is announcing draft guidance for industry on action levels for lead in processed foods that are intended for babies and children under two years of age, to help reduce potential health effects in this vulnerable population from dietary exposure to lead. The proposed action levels would result in significant reductions in exposures to lead from food while ensuring availability of nutritious foods. Today’s action is part of Closer to Zero, which sets forth the FDA’s science-based approach to continually reducing exposure to lead, arsenic, cadmium and mercury to the lowest levels possible in foods eaten by babies and young children.
“For more than 30 years, the FDA has been working to reduce exposure to lead, and other environmental contaminants, from foods. This work has resulted in a dramatic decline in lead exposure from foods since the mid-1980s.The proposed action levels announced today, along with our continued work with our state and federal partners, and with industry and growers to identify mitigation strategies, will result in long-term, meaningful and sustainable reductions in the exposure to this contaminant from foods,” said FDA Commissioner Robert M. Califf, M.D. “For babies and young children who eat the foods covered in today’s draft guidance, the FDA estimates that these action levels could result in as much as a 24-27% reduction in exposure to lead from these foods.”
Foods covered by the draft guidance, Action Levels for Lead in Food Intended for Babies and Young Children, are those processed foods, such as food packaged in jars, pouches, tubs and boxes and intended for babies and young children less than two years old. The draft guidance contains the following action levels:
- 10 parts per billion (ppb) for fruits, vegetables (excluding single-ingredient root vegetables), mixtures (including grain and meat-based mixtures), yogurts. custards/puddings and single-ingredient meats.
- 20 ppb for root vegetables (single ingredient).
- 20 ppb for dry cereals.
The FDA considers these action levels to be achievable when measures are taken to minimize the presence of lead and expects that industry will strive for continual reduction of this contaminant. The baby foods have differing action levels, to account for variances in consumption levels of different food products and due to some foods taking up higher amounts of lead from the environment. Action levels are one regulatory tool the FDA uses to help lower levels of chemical contaminants in foods when a certain level of a contaminant is unavoidable, for example due to environmental factors. To identify the action levels for categories of foods, the agency considered, among other factors, the level of lead that could be in a food without dietary exposure exceeding the FDA’s Interim Reference Level, a measure of the contribution of lead in food to blood lead levels.
Just as fruits, vegetables and grain crops readily absorb vital nutrients from the environment, these foods also take up contaminants, like lead, that can be harmful to health. The presence of a contaminant, however, does not mean the food is unsafe to eat. The FDA evaluates the level of the contaminant in the food and exposure based on consumption to determine if the food is a potential health risk. Although it is not possible to remove these elements entirely from the food supply, we expect that the recommended action levels will cause manufacturers to implement agricultural and processing measures to lower lead levels in their food products below the proposed action levels, thus reducing the potential harmful effects associated with dietary lead exposures. Although not binding, the FDA would consider these action levels, in addition to other factors, when considering whether to bring enforcement action in a particular case.
“The action levels in today’s draft guidance are not intended to direct consumers in making food choices. To support child growth and development, we recommend parents and caregivers feed children a varied and nutrient-dense diet across and within the main food groups of vegetables, fruits, grains, dairy and protein foods,” said Susan Mayne, Ph.D., director of the FDA’s Center for Food Safety and Applied Nutrition. “This approach helps your children get important nutrients and may reduce potential harmful effects from exposure to contaminants from foods that take up contaminants from the environment.”
As part of our approach, as laid out in 2021 when the FDA released Closer to Zero, the agency is committed to assessing if action levels should be lowered even further, based on evolving science on health impacts and mitigation techniques, and input from industry on achievability. We expect the draft action levels announced today, along with the draft action levels for lead in juice announced in 2022, will result in even lower levels of lead in the U.S. food supply. Moving forward, the agency will continue to gather data and collaborate with federal partners to establish the scientific basis for establishing Interim Reference Levels for arsenic, cadmium and mercury. Additionally, the FDA is considering the more than 1,100 comments it received in November 2021 during the “Closer to Zero Action Plan: Impacts of Toxic Element Exposure and Nutrition at Different Crucial Developmental Stages for Babies and Young Children” public meeting to inform its strategy moving forward for future planned action on contaminants and fostering engagement, education and sharing of public data and information.
The FDA will host a webinar to provide an overview of the draft guidance and answer stakeholder questions. More details on the webinar will be announced shortly.
- Action Levels for Lead in Food Intended for Babies and Young Children
- FDA Issues Draft Guidance to Industry on Action Levels for Lead in Baby Foods
- Releases Action Plan for Reducing Exposure to Toxic Elements from Foods for Babies, Young Children
- Lead in Food, Foodwares, and Dietary Supplements
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Study Identifies Cause for Mysterious Cases of Epilepsy in Children
International collaboration uncovers mosaicism, a condition in which cells within the same person have a different genetic makeup, as a cause for pediatric seizures
Newswise — Epilepsy is present in 4% of the population, and is among the most common brain disorders in children. Modern medicine can prevent most seizure recurrences, but approximately 20% of patients do not respond to treatment.
In these cases, the reason may originate in patches of damaged or abnormal brain tissue known as “malformations of cortical development” (MCD), which results in a diverse group of neurodevelopment disorders. Surgical resection or removal of the patch can cure the seizures, and epilepsy surgery to improve neurological outcomes is now a key part of the modern medical armamentarium, but what causes the patches has largely remained a mystery.
Writing in the January 12, 2023 issue of Nature Genetics, researchers at University of California San Diego School of Medicine and Rady Children’s Institute for Genomic Medicine, collaborating with an international consortium of more than 20 children’s hospitals worldwide, report a significant breakthrough in understanding the genetic causes of MCD.
Members of the Focal Cortical Dysplasia Neurogenetics Consortium investigated 283 brain resections from children across a range of MCD types, with parental consent, looking for potential genetic causes. Because most brain tissue in these children is normal, the scientists focused on mutations present in a small subset of brain cells, a phenomenon termed genetic somatic mosaicism.
“This was a decade-long journey, bringing specialists together from around the world, to recruit patients for this study,” said senior study author Joseph Gleeson, MD, Rady Professor of Neuroscience at UC San Diego School of Medicine and director of neuroscience research at the Rady Children’s Institute for Genomic Medicine. “Until recently, most hospitals did not study resected brain tissue for genetic causes. The consortium organized a biobank to store tissue for high-throughput mosaicism analysis.”
Previous research by Gleeson and colleagues had shown that genetic somatic mosaicism in the mTOR signaling pathway was a contributing factor, said co-first author Changuk Chung, PhD, a postdoctoral fellow in the Gleeson lab.
“But most patients remain undiagnosed, which hinders treatment. We tested for hidden mutations, detectable only by greatly expanding the cohort size and improving methods so that the results could be meaningful. We collaborated to solve technical and logistical bottlenecks. The pieces fell into place, but it took 10 years.”
The team conducted intensive genomic discovery using state-of-art somatic mosaic algorithms developed by the National Institutes of Health-sponsored Brain Somatic Mosaicism Network, of which UC San Diego is a member.
“We tried our best to detect mutations in as little as 1 percent of cells,” said co-first author Xiaoxu Yang, PhD, a postdoctoral scholar in Gleeson’s lab. “Initially we failed. To solve these problems, we needed to develop novel artificial intelligence methods to overcome barriers in sensitivity and specificity.”
The team ultimately identified 69 different genes carrying somatic brain mutations, the majority of which have never previously reported in MCD.
“We can draw parallels with the cancer field because these mutations disrupt cellular function and need to be resected,” said co-first author Chung. “However, unlike cancer cells, brain cells mostly do not divide so these cells misbehave by stimulating epileptic seizures. The question that arose was whether the newly found gene mutations were sufficient to cause MCD disease.”
Gleeson said the scientists found that the genes converged on calcium signaling, gene expression and synaptic functions, and noted that when the mutations were introduced into a mouse model, abnormalities similar to those seen in patients were observed. The study authors suggest the findings could be used to improve diagnosis and develop cures for MCD disease.
“The MCD genes in patient brains have demonstrated critical roles during cortical development,” said Gleeson. “These findings could lead to new molecular classifications for MCD, and ultimately to personalized therapies for epilepsy.”
For a complete list of co-authors, see full study.
Funding for this research came, in part, from the National Institutes of Health (grants NIMH U01MH108898 and R01MH124890, NIA R21AG070462, NINDS R01NS083823), the San Diego Supercomputer Center and UC San Diego Institute of Genomic Medicine.
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