Health
International Myeloma Foundation (IMF) Launches M-Power New York to Improve Multiple Myeloma Outcomes in the Black Community
NEW YORK /PRNewswire/ — The International Myeloma Foundation (IMF) today announced that it is collaborating with Memorial Sloan Kettering Cancer Center (MSK) in New York City to launch M-Power New York—a program designed to empower people to change the course of myeloma by removing barriers to early diagnosis and treatment in the Black community. The collaboration will kick off with a free online workshop on October 1 that will offer New Yorkers information about multiple myeloma.
The IMF is also working with MSK’s Office of Health Equity to enlist local leaders and healthcare professionals in promoting increased knowledge about this treatable but little-known disease.
“Patient education and advocacy for patients’ rights to health equity are critical to ensuring that the Black community is well-represented in clinical trials and that they have access to proper care and treatment. The IMF is committed to both—we are truly delighted to be partnering with the Memorial Sloan Kettering Cancer Care team, led by myeloma expert Dr. Saad Usmani,” says IMF Patient, President & CEO Yelak Biru.
“We are pleased to partner with the International Myeloma Foundation to launch M-Power New York, a program that follows the model used to help close the multiple myeloma disparities gap in other cities around the country,” said Saad Usmani, MD, Chief of MSK’s Myeloma Service. “This collaboration will help support MSK’s commitment to identifying and addressing the cancer care access and outcomes disparities faced by Black New Yorkers diagnosed with multiple myeloma, and we are looking forward to connecting with this community at our first educational workshop in October.”
Multiple myeloma is a cancer of the blood plasma cells. According to the latest data from the National Cancer Institute’s SEER program, an estimated 34,470 new myeloma cases will be diagnosed in the U.S. this year. Of these new cases, the American Cancer Society’s Cancer Facts and Figures for African American/Black People 2022-2024 estimates that 7,810 will be in Black Americans.
The incidence of multiple myeloma among people of African descent is more than two times higher compared to white people, with median age younger by three years (i.e., age 66 among Black people, age 70 among white people).
The good news is early detection and access to treatment can significantly improve survival and outcomes within the Black community. Getting a myeloma diagnosis as early as possible and treating the disease before it progresses is the key to improving survival, according to IMF Chief Medical Officer Dr. Joseph Mikhael.
“The latest research data show that Black myeloma patients do just as well, or even better than white patients, when barriers to early diagnosis and treatment are eliminated. These findings have been our organization’s call to action,” says Dr. Mikhael.
Additionally, Dr. Mikhael emphasizes that doctors do not typically check patients for myeloma during a regular visit because currently, there are no national screening recommendations for myeloma.
“That’s why it is so important for Black people to learn about the early symptoms of myeloma and to let their doctors know that they are at higher risk for the disease during regular check-ups,” advises Dr. Mikhael.
The M-Power New York Project launch will include:
- A dedicated M-Power New York website to make it easier for people to familiarize themselves with the symptoms of the disease and the latest treatments. The site offers digital, video and print educational materials; a tip card with key information to help facilitate conversations between patients and doctors; and a directory of local area support groups.
- A FREE Virtual M-Power New York Webinar on Saturday, October 1, hosted by Dr. Mikhael and featuring a panel of leading myeloma experts, including Dr. Saad Usmani (Memorial Sloan Kettering – New York, NY) and IMF Nurse Leadership Board (NLB) Member and MSK nurse Amy E. Pierre, RN, MSN, ANP-BC.
- During the webinar, members of the New York Tri-state community will learn more about “Why Race Matters in Myeloma Care & Survival,” symptoms and available treatments, and how to access support needed to navigate cancer. Additionally, an interview with patient-caregiver couple Terrence and Toni Green will reveal the struggles they went through after diagnosis and will highlight the importance of accessing proper care.
Diagnosed with multiple myeloma in October 2014 at age 61, Terrence calls attention to the importance of educating Black communities about the disease, especially because of their general distrust.
“Sometimes, there’s just a fear of going to the doctor. I am glad that they’re putting some emphasis there, because along with creating this, there’s a communications element which is very helpful to put the knowledge out there, and just the foresight to think about, ‘how do we get this information to a community?’ which, quite frankly, we know from COVID, we’re not that trusting in terms of things like that, given what has happened in the past, so I’m glad they have that, ” said Terrence.
Toni firmly believes that Black people need access to good doctors. “Not just any doctor, because any doctor may not be able to determine or catch this disease, and if they do, they may be catching it too late,” Toni emphasized. “They need good medical treatment. They need information about myeloma once they’re diagnosed, and they need to be provided with resources. Make sure they know that resources are available after they’re diagnosed because it’s expensive. No doubt.”
ABOUT THE M-POWER PROJECT
Partnering with cities across the U.S., the International Myeloma Foundation’s (IMF) M-Power Project aims to turn the core vision of the IMF Diversity Initiative into a reality: improving the short- and long-term outcomes of African American patients with multiple myeloma. By raising myeloma awareness and empowering healthcare professionals, community leaders, neighborhoods, and families, the M-Power Project aims to break down barriers for the African American myeloma community.
ABOUT THE INTERNATIONAL MYELOMA FOUNDATION
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest foundation focusing specifically on multiple myeloma. The Foundation’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure by focusing on four key areas: research, education, support, and advocacy. The IMF has conducted more than 250 educational seminars worldwide, maintains a world-renowned InfoLine, and in 2001, established the International Myeloma Working Group (IMWG), a collaborative research initiative focused on improving myeloma treatment options for patients. In 2012, the IMF launched the Black Swan Research Initiative®, a groundbreaking research project aimed at curing myeloma. The IMF can be reached at (800) 452-CURE (2873). The global website is www.myeloma.org.
Follow the IMF on:
Twitter: @IMFmyeloma
Instagram: @imfmyeloma
Facebook: @myeloma
LinkedIn: International Myeloma Foundation
SOURCE International Myeloma Foundation
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The First Suicide and Self-Harm Cross-Industry Signal Sharing Program to be Established Under the Leadership of The Mental Health Coalition
The Mental Health Coalition
NEW YORK, Sept. 12, 2024 /PRNewswire/ — The Mental Health Coalition (MHC) announced today a new program called Thrive, the first cross-industry signal sharing program designed to help stop the spread of suicide and self-harm content across different internet platforms. The goal is to increase industry collaboration, prevent online challenges from spreading virally, and help improve early detection of content that could potentially pose a safety risk.
Suicidal and self-harm content online can manifest in diverse forms, including viral challenges, text posts, visual media (images and livestreams), etc. While approaches employed by internet companies to mitigate harmful content differ, they are crucial for safeguarding user and viewer wellbeing. The expeditious identification and removal of suicide and self-harm content through Thrive will enable companies who are part of Thrive to investigate, take action and prevent similar content from being disseminated on their platforms fostering a safer online environment. While the technological infrastructure underpinning Thrive is not new (provided by Meta, it is already used by the Tech Coalition’s Lantern program), this initiative marks the first industry-wide endeavor to address suicide and self-harm content comprehensively across different platforms.
“We at MHC are excited to work with Thrive; a unique collaborative of the most influential social media platforms that have come together to address suicide and self-harm content. Meta, Snap and TikTok are some of the initial partners to join “the exchange” committing to make an even greater impact and help save lives,” said Kenneth Cole, Founder of The Mental Health Coalition.
“The integration of signal sharing, coupled with cross-industry collaboration and moderated by an independent and neutral intermediary, represents a major breakthrough in industry collaboration and public protection on the global, public health crisis of suicide and ultimately save lives,” said Dr. Dan Reidenberg, Director of Thrive.
Thrive will leverage a centralized technology platform, enabling the aggregation of information from diverse sources (platforms), where participating companies can receive alerts of content that raises concerns or contravenes their respective company policies or community standards against suicide and self-harm. Platforms are then able to independently assess whether to take action on the content. This new signal sharing program will be underpinned by a technical infrastructure provided by Meta which allows tech companies to securely share signals about content that breaks their suicide and self-harm policies. This approach addresses harmful content while respecting the autonomy of each organization’s moderation strategies, reduce the risk of contagion or content becoming viral across platforms and ensure measures exist and only share de-identified signals to protect the users privacy. There will be no personally identifiable information shared through Thrive.
“At Meta, we have strict rules against content that encourages, glorifies or shows graphic suicide or self-harm, and remove it whenever we become aware of it. Unfortunately this content isn’t limited to any one platform – especially when it comes to viral challenges – and it’s imperative that the technology industry works together to help prevent it from spreading. That’s why we’re proud to partner with the Mental Health Coalition and our peers to launch Thrive, and help keep people safe across the many apps they use.” Antigone Davis, VP of Global Safety at Meta.
“The safety and well-being of the Snapchat community is a top priority. Our dedicated teams, technologies, policies, and partnerships help keep our community safe, healthy, and informed, and our well-being features are designed to educate and empower individuals who might be struggling with their own social and emotional well-being. We are honored to be founding members of the Thrive initiative – an opportunity to continue to work industry-wide on approaches that strengthen capabilities to halt the spread of self-harm content.” Jacqueline Beauchere, Global Head of Platform Safety, Snap
“TikTok is an uplifting and entertaining part of many people’s day, and we continually invest in protecting and securing our community’s experience. By becoming a founding member of The Mental Health Coalition’s Thrive, we’re strengthening how we prevent harmful suicide and self-harm content online. Through this important collaboration and collective action, we hope to keep people safe on TikTok and beyond.” Valiant Richey, Global Head of Outreach and Partnerships, Trust and Safety, TikTok
Thrive’s Director will oversee operational aspects of the program, ensuring its effective functioning through convening, facilitating, moderating, and monitoring activities. Participating companies will assume responsibility for uploading, reviewing and taking the appropriate action on the content shared through Thrive and leveraging the platform to share insights and best practices. Dr Reidenberg will collaborate with other signal sharing exchange directors on optimal moderation strategies, lessons learned, and transparency protocols. An annual report will be issued to provide insight into the exchange’s use and impact.
Meta, Snap, and TikTok have pledged their support and participation as founding members, with other companies expected to join.
The Mental Health Coalition relies on donations. If you want to help support Thrive and the lifesaving work of the Coalition, please contact Dr Dan Reidenberg.
About The Mental Health Coalition
The Mental Health Coalition (www.thementalhealthcoalition.org), is a coalition of the Nation’s leading mental health organizations, brands, and individuals who have joined forces to end the debilitating stigma surrounding mental health and to change the way people talk about, and care for, mental illness. Our mission is to catalyze like-minded communities to work together to destigmatize mental health and empower access to vital resources and necessary support for all.
The Mental Health Coalition was formed with the understanding that the mental health crisis is fueled by a pervasive and devastating stigma, preventing millions of individuals from being able to seek the critical treatment they need. We will not relent until mental health is no longer associated with stigma, shame or judgment and all people feel empowered to openly discuss and address their individual mental health needs.
SOURCE The Mental Health Coalition
Our Lifestyle section on STM Daily News is a hub of inspiration and practical information, offering a range of articles that touch on various aspects of daily life. From tips on family finances to guides for maintaining health and wellness, we strive to empower our readers with knowledge and resources to enhance their lifestyles. Whether you’re seeking outdoor activity ideas, fashion trends, or travel recommendations, our lifestyle section has got you covered. Visit us today at https://stmdailynews.com/category/lifestyle/ and embark on a journey of discovery and self-improvement.
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Lifestyle
Fall Respiratory Virus Vaccines: What pregnant people need to know
(Family Features) Fall brings cooler days and more time indoors. This makes it easier for viruses like influenza (flu), COVID-19 and respiratory syncytial virus (RSV) to spread. These illnesses can be especially risky for pregnant people and newborns. Getting vaccinated for flu, COVID-19 and RSV during your pregnancy lets you pass protection to your baby. Your immunity helps keep them from getting very sick from one of these viruses in their first few months of life.
Virus Vaccines
Vaccines for flu and COVID-19 also protect expectant parents from serious symptoms. Pregnant people are more likely to need medical care or hospitalization for flu and COVID-19 than people their age who are not pregnant, according to the Risk Less. Do More. Public Education Campaign.
“It makes sense that people are very careful about the health choices they make during pregnancy,” said Manisha Patel, MD, MS, MBA, Chief Medical Officer of the National Center for Immunization and Respiratory Diseases. “The good news is that flu and COVID-19 vaccines are the best way to protect you and your baby against serious disease. RSV vaccines cut by more than half the risk of your baby being hospitalized for severe RSV disease, the leading cause of hospitalization for infants in the United States.”
Here are some key facts about pregnancy and vaccination:
Getting vaccinated protects you during and after pregnancy.
Common respiratory viruses can be dangerous for people who are pregnant or have recently been pregnant. This is because respiratory illnesses during pregnancy are more likely to be severe. Studies show that the flu and COVID-19 vaccines are the best protection for pregnant people. They lower the risk of serious illness, hospitalization and death. Like medications, vaccines can cause side effects, but side effects from flu and COVID-19 vaccines are almost always mild and brief. The benefits of these vaccines outweigh the risks for most people.
The Centers for Disease Control and Prevention also recommends an RSV vaccine during pregnancy. Vaccination during pregnancy cuts the risk of a newborn being hospitalized with RSV by half.
Getting vaccinated protects your unborn or nursing child.
Flu, COVID-19 and RSV viruses are dangerous for both unborn and newborn children. About 20,000 children under age 5 in the U.S. are hospitalized with flu each year. Infants under 6 months are at the highest risk of serious complications. Infants are also at higher risk for RSV. In fact, it’s the top reason babies in the U.S. are hospitalized.
When a pregnant person gets vaccinated for flu, COVID-19 or RSV, they share their immunity with their child. Recent studies also show that some breastfeeding parents maintain infection-fighting antibodies in their breastmilk after vaccination. This immunity can also help protect their baby.
Timing for vaccinations is important.
Getting vaccinated for flu, COVID-19 and RSV during pregnancy builds antibodies that can help protect the baby. Get the yearly COVID-19 and flu vaccines this fall season. For RSV, it is recommended that pregnant people get vaccinated between 32-36 weeks of pregnancy during the RSV season, which is from September-January in most parts of the United States.
If you have questions or concerns, talk to your doctor. Knowing the facts about vaccination and pregnancy can offer confidence and comfort. Visit cdc.gov/RiskLessDoMore to learn more and talk with your doctor about getting your flu, COVID-19 and RSV vaccines.
Photo courtesy of Shutterstock
SOURCE:
United States Department of Health and Human Services
Our Lifestyle section on STM Daily News is a hub of inspiration and practical information, offering a range of articles that touch on various aspects of daily life. From tips on family finances to guides for maintaining health and wellness, we strive to empower our readers with knowledge and resources to enhance their lifestyles. Whether you’re seeking outdoor activity ideas, fashion trends, or travel recommendations, our lifestyle section has got you covered. Visit us today at https://stmdailynews.com/category/lifestyle/ and embark on a journey of discovery and self-improvement.
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What Ophthalmologists Want You to Know About Eye Color-Changing Drops
Newswise — SAN FRANCISCO, Calif. — The American Academy of Ophthalmology is sounding the alarm on over-the-counter eye drops advertised as eye color-changing solutions. These products are not FDA approved, have not been tested for safety or efficacy, and could potentially damage the eyes.
“Consumers seeing these products on TikTok or elsewhere online need to know that they are not FDA approved,” said JoAnn A. Giaconi, MD, clinical spokesperson for the American Academy of Ophthalmology. “The ads show dramatic before-and-after shots and vague information on how the drops actually work to change eye color. But here’s the reality, there’s no evidence that they do anything at all, and no evidence that they’re safe.”
Because the products are not FDA approved, they have not undergone rigorous safety and efficacy testing, and it’s unclear if Current Good Manufacturing Practice regulations were followed during production. Unregulated manufacturing facility conditions can lead to contaminated products that can cause dangerous eye infections.
Eye Color-Changing Drops
Potential safety risks of using unregulated eye drops include:
- Inflammation
- Infection
- Light sensitivity
- Increased eye pressure or glaucoma
- Permanent vision loss
Manufacturers claim that the drops include an ingredient that adjusts natural levels of melanin in the iris, the colored part of the eye. But there is no evidence that the formula can target the iris pigment. And if the drops did destroy the pigmented cells in the iris, it could potentially harm the eye, causing light sensitivity, eye inflammation, and eventually vision loss. It’s also unclear how other parts of the eye that rely on melanin to function properly, such as the retina, would react to this ingredient.
“Social media and the internet are full of potentially dangerous eye health claims. Bottomline, the Academy advises the public to never put anything in the eye that isn’t made to go in the eye,” Dr. Giaconi said. “You’re putting yourself at risk for painful eye conditions or even blindness.”
The safest way to change eye color is with colored contact lenses, but only if the lenses are prescribed, dispensed, and fitted by a qualified eye health professional.
For more information about eye health and how to protect your eyes, visit the Academy’s EyeSmart website.
About the American Academy of Ophthalmology
The American Academy of Ophthalmology is the world’s largest association of eye physicians and surgeons. A global community of 32,000 medical doctors, we protect sight and empower lives by setting the standards for ophthalmic education and advocating for our patients and the public. We innovate to advance our profession and to ensure the delivery of the highest-quality eye care. Our EyeSmart® program provides the public with the most trusted information about eye health. For more information, visit aao.org.
Source: American Academy of Ophthalmology (AAO)
Our Lifestyle section on STM Daily News is a hub of inspiration and practical information, offering a range of articles that touch on various aspects of daily life. From tips on family finances to guides for maintaining health and wellness, we strive to empower our readers with knowledge and resources to enhance their lifestyles. Whether you’re seeking outdoor activity ideas, fashion trends, or travel recommendations, our lifestyle section has got you covered. Visit us today at https://stmdailynews.com/category/lifestyle/ and embark on a journey of discovery and self-improvement.
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