fbpx
Connect with us

Health

International Myeloma Foundation (IMF) Launches M-Power New York to Improve Multiple Myeloma Outcomes in the Black Community

Published

on

NEW YORK /PRNewswire/ — The International Myeloma Foundation (IMF) today announced that it is collaborating with Memorial Sloan Kettering Cancer Center (MSK) in New York City to launch M-Power New York—a program designed to empower people to change the course of myeloma by removing barriers to early diagnosis and treatment in the Black community. The collaboration will kick off with a free online workshop on October 1 that will offer New Yorkers information about multiple myeloma.

The IMF is also working with MSK’s Office of Health Equity to enlist local leaders and healthcare professionals in promoting increased knowledge about this treatable but little-known disease.

The International Myeloma Foundation (IMF) today announced that it is collaborating with Memorial Sloan Kettering Cancer Center (MSK) in New York City to launch M-Power New York—a program designed to empower people to change the course of myeloma by removing barriers to early diagnosis and treatment in the Black community.

“Patient education and advocacy for patients’ rights to health equity are critical to ensuring that the Black community is well-represented in clinical trials and that they have access to proper care and treatment. The IMF is committed to both—we are truly delighted to be partnering with the Memorial Sloan Kettering Cancer Care team, led by myeloma expert Dr. Saad Usmani,” says IMF Patient, President & CEO Yelak Biru.

“We are pleased to partner with the International Myeloma Foundation to launch M-Power New York, a program that follows the model used to help close the multiple myeloma disparities gap in other cities around the country,” said Saad Usmani, MD, Chief of MSK’s Myeloma Service. “This collaboration will help support MSK’s commitment to identifying and addressing the cancer care access and outcomes disparities faced by Black New Yorkers diagnosed with multiple myeloma, and we are looking forward to connecting with this community at our first educational workshop in October.”

Multiple myeloma is a cancer of the blood plasma cells. According to the latest data from the National Cancer Institute’s SEER program, an estimated 34,470 new myeloma cases will be diagnosed in the U.S. this year. Of these new cases, the American Cancer Society’s Cancer Facts and Figures for African American/Black People 2022-2024 estimates that 7,810 will be in Black Americans.

The incidence of multiple myeloma among people of African descent is more than two times higher compared to white people, with median age younger by three years (i.e., age 66 among Black people, age 70 among white people).

The good news is early detection and access to treatment can significantly improve survival and outcomes within the Black community. Getting a myeloma diagnosis as early as possible and treating the disease before it progresses is the key to improving survival, according to IMF Chief Medical Officer Dr. Joseph Mikhael.

“The latest research data show that Black myeloma patients do just as well, or even better than white patients, when barriers to early diagnosis and treatment are eliminated. These findings have been our organization’s call to action,” says Dr. Mikhael.

Additionally, Dr. Mikhael emphasizes that doctors do not typically check patients for myeloma during a regular visit because currently, there are no national screening recommendations for myeloma.

“That’s why it is so important for Black people to learn about the early symptoms of myeloma and to let their doctors know that they are at higher risk for the disease during regular check-ups,” advises Dr. Mikhael.

The M-Power New York Project launch will include:

  • A dedicated M-Power New York website to make it easier for people to familiarize themselves with the symptoms of the disease and the latest treatments. The site offers digital, video and print educational materials; a tip card with key information to help facilitate conversations between patients and doctors; and a directory of local area support groups.
  • A FREE Virtual M-Power New York Webinar on Saturday, October 1, hosted by Dr. Mikhael and featuring a panel of leading myeloma experts, including Dr. Saad Usmani (Memorial Sloan Kettering – New York, NY) and IMF Nurse Leadership Board (NLB) Member and MSK nurse Amy E. Pierre, RN, MSN, ANP-BC.
  • During the webinar, members of the New York Tri-state community will learn more about “Why Race Matters in Myeloma Care & Survival,” symptoms and available treatments, and how to access support needed to navigate cancer. Additionally, an interview with patient-caregiver couple Terrence and Toni Green will reveal the struggles they went through after diagnosis and will highlight the importance of accessing proper care.

Diagnosed with multiple myeloma in October 2014 at age 61, Terrence calls attention to the importance of educating Black communities about the disease, especially because of their general distrust.

“Sometimes, there’s just a fear of going to the doctor. I am glad that they’re putting some emphasis there, because along with creating this, there’s a communications element which is very helpful to put the knowledge out there, and just the foresight to think about, ‘how do we get this information to a community?’ which, quite frankly, we know from COVID, we’re not that trusting in terms of things like that, given what has happened in the past, so I’m glad they have that, ” said Terrence.

Toni firmly believes that Black people need access to good doctors. “Not just any doctor, because any doctor may not be able to determine or catch this disease, and if they do, they may be catching it too late,” Toni emphasized. “They need good medical treatment. They need information about myeloma once they’re diagnosed, and they need to be provided with resources. Make sure they know that resources are available after they’re diagnosed because it’s expensive. No doubt.”

ABOUT THE M-POWER PROJECT

Partnering with cities across the U.S., the International Myeloma Foundation’s (IMF) M-Power Project aims to turn the core vision of the IMF Diversity Initiative into a reality: improving the short- and long-term outcomes of African American patients with multiple myeloma. By raising myeloma awareness and empowering healthcare professionals, community leaders, neighborhoods, and families, the M-Power Project aims to break down barriers for the African American myeloma community.

ABOUT THE INTERNATIONAL MYELOMA FOUNDATION

Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest foundation focusing specifically on multiple myeloma. The Foundation’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure by focusing on four key areas: research, education, support, and advocacy. The IMF has conducted more than 250 educational seminars worldwide, maintains a world-renowned InfoLine, and in 2001, established the International Myeloma Working Group (IMWG), a collaborative research initiative focused on improving myeloma treatment options for patients. In 2012, the IMF launched the Black Swan Research Initiative®, a groundbreaking research project aimed at curing myeloma. The IMF can be reached at (800) 452-CURE (2873). The global website is www.myeloma.org.

Follow the IMF on: 

Twitter: @IMFmyeloma 
Instagram: @imfmyeloma
Facebook: @myeloma
LinkedIn: International Myeloma Foundation 

SOURCE International Myeloma Foundation


health and wellness

Community Fundraiser Hosted by CFC in Support of Infertility Awareness Week

Canadian Fertility Consulting and Fertility Matters Canada Unite for Virtual Paint Night Fundraiser

Published

on

TORONTO (Newswire.com) – Canadian Fertility Consulting is proud to announce a Virtual Paint Night Fundraiser in support of Infertility Awareness Week, scheduled for April 28, 2024. This event aims to raise awareness about infertility issues while supporting Fertility Matters Canada, a national charity dedicated to assisting those struggling with fertility challenges.

The virtual paint night will be led by the talented Jenny Hughes of Oceanside Art Studios, offering participants the opportunity to unleash their creativity while supporting a meaningful cause. Taking part is simple – join from the comfort of your home via Microsoft Teams, and we will provide all the necessary paint materials, conveniently shipped directly to your door.

“We are thrilled to host this virtual paint night fundraiser to support Infertility Awareness Week and Fertility Matters Canada,” said Janet Harbick, Administrative Specialist at Canadian Fertility Consulting. “It’s an opportunity for our community to come together, express themselves artistically, and raise vital funds for a cause that impacts so many lives.”

Participants are encouraged to register by April 12, 2024, to ensure timely delivery of the paint supplies. Registration and payment are required to secure your spot in this event.

The theme for the evening is to paint a beautiful hatching embryo, with each participant adding their own unique interpretation. No prior painting experience is necessary, as guidance will be provided throughout the virtual session.

Infertility affects one in six Canadians, leading many to explore alternative paths to parenthood. Statistics show that 40% of infertility cases are attributed to female factors, 30% to male factors, and 30% to joint infertility or remain unexplained. Additionally, various factors such as sexual orientation, genetic diseases, gynecological issues, and career considerations contribute to the complexity of infertility challenges faced by individuals and couples across every demographic and economic group.

Canadian Fertility Consulting is Canada’s largest surrogacy and egg donation agency, committed to assisting couples and individuals in their journey to parenthood. With a mission to build families with love, we provide guidance and support throughout the process of exploring alternative methods of family building.

Join us for a night of creativity and compassion as we come together to support Infertility Awareness Week and Fertility Matters Canada. Together, we can make a difference in the lives of those affected by infertility.

For more information and to register for the Virtual Paint Night Fundraiser, visit Paint Night Event Registration.

About Canadian Fertility Consulting:

Canadian Fertility Consulting is Canada’s largest surrogacy and egg donation agency, dedicated to helping couples and individuals navigate the challenges of infertility. With a focus on compassion and support, we assist in building families through surrogacy and egg donation arrangements.

Continue Reading

health and wellness

World Health Day 2020: Celebrating Nurses and Midwives in Healthcare

World Health Day: Celebrating nurses and midwives, the backbone of healthcare. #HealthcareHeroes #WorldHealthDay2020

Published

on

Today isWorld Health Day, an annual event that takes place on April 7th, organized by the World Health Organization (WHO). This day serves as a platform to highlight various health issues and set the tone for future developments in the global wellness and medical world. From mental health to insurance and everything in between, World Health Day tackles it all.

Let’s delve into the history of this significant day. The creation of the World Health Organization marked a turning point in international health efforts. In December 1945, officials from Brazil and China proposed the establishment of a comprehensive and independent international health organization. Half a year later, in July 1946, the WHO Constitution was approved in New York. On April 7, 1948, this constitution entered into force with 61 countries signing an agreement to inaugurate the NGO.

World Health Day: Celebrating nurses and midwives, the backbone of healthcare. #HealthcareHeroes #WorldHealthDay2020

Among the early initiatives of WHO was the introduction of World Health Day. Originally observed on July 22, 1949, the date was later changed to April 7, coinciding with the establishment of WHO, in order to encourage student participation. Since 1950, each World Health Day has been assigned a different theme, chosen by the WHO Director-General in consultation with member governments and staff.

World Health Day offers a globally significant opportunity to draw attention to crucial public health issues that impact communities worldwide. On this day, various promotional programs are launched that extend far beyond April 7th, raising awareness and fostering positive change.

This year, World Health Day shines a spotlight on the exceptional contributions made by nurses and midwives to the healthcare industry. Nurses and midwives are the devoted and restless workforce that has transformed healthcare as we know it. Their tireless efforts, compassion, and expertise make them the backbone of the healthcare system, providing invaluable care and support to individuals and communities across the globe.

World Health Day 2020 celebrates nurses and midwives by organizing advocacy events worldwide. One of the highlights is the launch of the first-ever State of the World’s Nursing Report. This groundbreaking report will provide critical insights and recommendations to optimize the contributions of the nursing workforce. In 2021, a similar report focusing on the midwifery workforce will follow.

On this World Health Day, let us all join hands in acknowledging and appreciating the vital role played by nurses and midwives in providing healthcare. We owe them our gratitude and support. Take a moment to thank a nurse or midwife who has made a difference in your life or participate in events and discussions that promote their recognition.

Remember, every day is an opportunity to prioritize our health and well-being. Let World Health Day serve as a reminder to embrace healthy living, support those who care for us, and work towards a healthier future.

Stay joyful, stay healthy, and happy World Health Day!

https://nationaltoday.com/world-health-day/

https://stmdailynews.com/category/lifestyle/

Continue Reading

health and wellness

Walk Your Way to Better Health

A walk is not just good for your body, it’s also good for your soul. Physical activity, like walking, is one of the best ways to reduce stress and boost your mood for better health.

Published

on

(Family Features) A walk is not just good for your body, it’s also good for your soul. Physical activity, like walking, is one of the best ways to reduce stress and boost your mood. However, reports show walking rates are declining steadily in the United States.

On average, 1 out of every 4 U.S. adults sits for longer than eight hours each day, per research from the Centers of Disease Control and Prevention, which can have negative consequences on physical and mental health. Regular exercise improves mood, boosts energy and can even help you sleep better. Staying active is one of the best ways to keep your mind and body healthy.

Consider this advice from the American Heart Association, which has worked for decades to promote policies and strategies that make it easier for communities to get and stay active. One example is National Walking Day on April 3, established by the organization to encourage people to move more throughout the day so they can feel, think, sleep and live better.

Indeed, adding more movement can benefit your body and mind in numerous ways, such as:

Lowering disease risk. Getting the recommended amount of physical activity (at least 150 minutes of moderate, 75 minutes of vigorous or a combination of those activities per week) is linked to lower risk of diseases, stronger bones and muscles, improved mental health and cognitive function and lower risk of depression, according to the U.S Department of Health and Human Services.

Increasing sunlight exposure. Outdoor exercise is an easy way to get moving and take in the sunlight, which can improve mood, boost immunity and help you get some vitamin D. Spending time outdoors is a no-cost option and has been shown to reduce stress, promote a sense of belonging and improve mood.

Improving cognitive and mental function. Physical activity keeps your mind sharp now and later. Studies show higher fitness levels are linked to better attention, learning, working memory and problem solving. What’s more, a study published in the “British Journal of Sports Medicine” shows people who get the recommended amount of physical activity are less likely to develop depression.

Living longer. Healthy life expectancy can be positively impacted by increasing activity. According to research published in the “American Journal of Epidemiology,” swapping just 30 minutes of sitting with low-intensity physical activity reduced risk of death by 17%.

Get moving to reduce your stress and step into better health. Learn more at heart.org/movemore.

Get Inspired to Get Moving

A little creativity can go a long way to make your walk more fun. You might think of walking as a solo activity, but a companion makes it even more enjoyable. Ask colleagues, friends or family to join you.

A walk is a perfect excuse to take a break from a long day at your desk. If you work remotely, take a conference call on the go or plan your walk as a reward for completing a project.

Use your walk as a guilt-free opportunity to listen to a new audiobook or create a walking soundtrack of your favorite upbeat music.

Mix up your scenery. Taking new routes keeps your walks interesting and helps prevent boredom from traveling the same predictable path.

If you need an extra nudge to get moving, a pet may help you get fit. Dog parents are more likely to reach their fitness goals than those without canine companions. In fact, according to the “Journal of Physical Activity & Health,” dog parents are 34% more likely to fit in 150 minutes of walking a week than non-dog owners. Pets can also help lower stress, blood pressure, cholesterol and blood sugar and boost your overall happiness and well-being.

Photos courtesy of Shutterstock


SOURCE:
American Heart Association

https://stmdailynews.com/category/lifestyle/health-and-wellness/health/

Continue Reading

Trending