health and wellness
Beyond Celiac Identifies Health Disparities in Celiac Disease Awareness, Diagnosis and Treatment for Black Americans
Last Updated on May 19, 2024 by Daily News Staff
PHILADELPHIA /PRNewswire/ — Black Americans (63%) are significantly more likely than Hispanic Americans (49%) and White Americans (47%) to have no awareness of celiac disease and/or gluten-sensitivity, suggesting potential health inequities in both diagnosis and treatment, according to a nationwide benchmark survey conducted by The Harris Poll on behalf of Beyond Celiac, the leading catalyst for a celiac disease cure. Other research indicates celiac disease diagnosis and treatment disparities for Black Americans.
A serious autoimmune condition that causes damage to the small intestine resulting in debilitating symptoms, celiac disease, if left untreated, can lead to a number of long-term health problems including infertility and some types of cancer. Celiac disease affects one in 133 Americans.
Other key findings about Black Americans and celiac disease from the 2022 Beyond Celiac Survey Report
indicating lack of awareness and health information about celiac disease and/or gluten-sensitivity include:
- Only 8% of Black Americans know that celiac disease often runs in families, compared to 21% of Hispanic Americans and 24% of White Americans.
- Only 37% of Black Americans, compared to 52% of Hispanic Americans and 58% of White Americans, realize that following a strict 100% gluten-free diet is how someone with celiac disease controls it today.
- Only 33% of Black Americans are aware that someone with celiac disease who strictly follows a gluten-free diet still has to worry about experiencing celiac disease symptoms or health conditions caused by it, whereas 41% of Hispanic Americans and 56% of White Americans know it.
“Celiac disease is not only mis-understood, it is also misdiagnosed. We know equal access to healthcare information, diagnosis and treatment is a concern on many levels including for people of color. These inequities place Black Americans at greater risk for poor health outcomes especially when it comes to a condition like celiac disease which is hard to diagnose and has no treatment or cure,” Beyond Celiac CEO Alice Bast said.
Additional Disparity Research
In a study by the University of Chicago and Harvard School of Public Health, researchers found that Black Americans who have symptoms associated with celiac disease have 90% decreased odds of receiving the appropriate follow-up for diagnosis.
At the University of Alabama at Birmingham, a new registry of celiac disease patients showed that Black Americans with biopsy-confirmed celiac disease were more likely than non-Hispanic White Americans to have negative results on the most commonly-used diagnostic blood test for celiac disease, the anti-tissue transglutaminase immunoglobulin A (TTG) blood test. A positive TTG test will often trigger an endoscopy and biopsy for celiac disease diagnosis. The study raised the question of whether further confirmatory testing for celiac disease is deterred in Black Americans in general clinical practice. Eighty percent of Black patients with biopsy-confirmed celiac disease in the registry had TTG test results that were less than the upper limit of normal, compared to about 9 percent of non-Hispanic White patients in the registry. Additionally Black patients were much less likely to have tests for the genes associated with celiac disease.
Moving Forward
“We believe is important that all Americans understand the symptoms of celiac disease so they can advocate for their own health, including gaining an accurate diagnosis and the treatment needed to live a healthy life,” Bast said. “Beyond Celiac is taking action to increase awareness, diagnosis and treatment for Black Americans.” Two examples of this action are the NMQF project and Voices of Celiac Disease Project.
In partnership with the National Minority Quality Forum (NMQF), Beyond Celiac is examining and addressing health inequities in the diagnosis and treatment of celiac disease. Beyond Celiac and NMQF, a leading advocacy organization on issues of health disparity, are investigating the extent of undiagnosed celiac disease, particularly among non-Caucasians, through analysis of Medicare and Medicaid data. The goal is to map celiac disease across the United States to drive diagnosis and ensure clinical trials include a diverse, representative patient population.
In the Beyond Celiac Voices of Celiac Disease project, non-whites with celiac disease have shared stories of being dismissed by physicians who told them they could not have celiac disease because of their race and, thus delaying diagnosis due to race.
The Harris Poll Survey Methodology
This survey was conducted online within the United States by The Harris Poll on behalf of Beyond Celiac from February 8-10, 2022 among 2,039 adults ages 18 and older. The sampling precision of Harris online polls is measured by using a Bayesian credible interval. For this study, the sample data is accurate to within + 2.8 percentage points using a 95% confidence level. For complete survey methodology, including weighting variables and subgroup sample sizes, please contact cbaker@beyondceliac.org
About Beyond Celiac
Founded in 2003, Beyond Celiac is the leading catalyst for a celiac disease cure in the United States, serving as a patient advocacy and research-driven organization working to drive diagnosis and accelerate the discovery of new treatments. By engaging with the top scientists in the field, making the right investments in research and supporting the broad community of those with celiac disease and gluten sensitivity, Beyond Celiac envisions a world in which people can live healthy lives and eat without fear – a world Beyond Celiac. www.BeyondCeliac.org.
SOURCE Beyond Celiac
home improvement
Sleep Better This Summer with Breathable Bedding
Breathable Bedding: If warm summer temperatures have you tossing and turning at night, you aren’t alone. Heat is a common culprit behind seasonal insomnia and can make it difficult to get a good night’s sleep. When the body struggles to cool down properly, it may lead to restlessness, night sweats, and disrupted sleep patterns.
Sleep Better This Summer with Breathable Bedding
(Feature Impact) If warm summer temperatures have you tossing and turning at night, you aren’t alone. Heat is a common culprit behind seasonal insomnia and can make it difficult to get a good night’s sleep. When the body struggles to cool down properly, it may lead to restlessness, night sweats, and disrupted sleep patterns.
Watch this video to learn more
Before you reach for the thermostat, though, take some time to examine your bedroom setup. Switching to breathable bedding, like Bedsure PureWoven Bamboo Sheets, can help your body regulate its temperature better overnight. Made with bamboo-derived fibers, the sets include sheets, pillowcases, duvet covers, and comforters designed to keep you cool and comfortable while you sleep. The bamboo viscose material is moisture-wicking and smooth, and you can choose from a variety of colors to match your decor.
In addition to choosing bedding made with soft, breathable materials like viscose derived bamboo sheets bamboo, try using fans to promote better airflow in your bedroom. You can also improve your overall sleep quality by winding down with soft, dim lighting as you prepare for bed, and using blackout curtains to keep your space dark overnight.
Making simple swaps in your sleep environment can help you stay well-rested throughout the summer. Learn more at bedsurehome.com or search “Bedsure PureWoven Bamboo Sheets” on Amazon.
SOURCE:
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Lifestyle
Your Medicare Roadmap: What to Know Before You Turn 65
Sixty-five is more than a number. It’s a milestone. A moment to reflect on where you’ve been and look forward with confidence to what comes next. For millions of Americans, turning 65 also means unlocking one of the most valuable benefits you’ve earned: Medicare.
Last Updated on July 1, 2026 by Daily News Staff
(Feature Impact) Sixty-five is more than a number. It’s a milestone. A moment to reflect on where you’ve been and look forward with confidence to what comes next. For millions of Americans, turning 65 also means unlocking one of the most valuable benefits you’ve earned: Medicare.
The best is still ahead, and it starts with knowing your options. The official source for Medicare information, Medicare.gov, is here to help with clear, trusted information.
The path to Medicare is not the same for everyone. Some people get Medicare automatically and others have to sign up. It depends on whether you are already getting Social Security. Either way, you’ll want to choose how you get your Medicare coverage.
Get information for your path at Medicare.gov, where you can find out when and how to enroll and explore your coverage options.
Understanding Your Medicare Coverage Options
When you first sign up for Medicare, you choose how to get your coverage. There are two main options: Original MedicareandMedicare Advantage.
Original Medicare is health coverage provided directly by the federal government. It has two parts:
- Part A (Hospital Insurance) covers inpatient hospital stays, skilled nursing facility care, hospice care and home health care. Most people pay no premium for Part A.
- Part B (Medical Insurance) covers doctor visits, outpatient care, preventive services (like screenings, vaccines and annual wellness visits) and durable medical equipment like wheelchairs and walkers. The standard Part B premium is $202.90 per month and is typically deducted from your Social Security check.
With Original Medicare, you can visit any doctor or hospital in the U.S. that accepts Medicare. You can also add optional coverage to help manage costs:
- Medigap (Supplemental Insurance) helps pay your share of Medicare costs.
- Part D (Prescription Drug Coverage) helps pay for medications.
Medicare Advantage is an alternative to Original Medicare that provides Part A and Part B and is offered by private insurers approved by Medicare. You still pay the Part B premium. Some plans charge an additional premium – though many carry a $0 plan premium and may even help cover part of your Part B cost. Most plans include in Part D drug coverage along with extra benefits like dental, vision and hearing. Keep in mind most plans require you to use doctors within the plan’s network.
5 Steps to Enroll with Confidence
- Use official sources. Go to Medicare.gov or call 1-800-MEDICARE for step-by-step, personalized guidance on coverage and enrollment.
- Start early. You don’t have to wait until your birthday. Explore your options now so you’re ready when your enrollment window opens.
- Know your enrollment path. Your path depends on your circumstances – some people are automatically enrolled and some are not. There are unique steps for people who are still working.
- Avoid late enrollment penalties. Missing your enrollment window can result in a permanent premium penalty for both Part B and Part D. Signing up on time protects your wallet for years to come.
- Compare plans and save. At Medicare.gov, you can compare plan costs side-by-side, based on the specific drugs you take. A quick comparison could save you money each year. You can also confirm your current doctors are in-network before you choose a plan.
Turning 65 is a milestone worth celebrating and it’s the perfect time to focus on what matters most: your health and well-being. That includes eating well, exercising and making sure you have health insurance that fits your needs. There’s no one-size-fits-all plan. What’s important is finding an option that works for you and your health and financial needs.
Start your journey at Medicare.gov – your roadmap to a healthier and confident future.
Information provided by the U.S. Department of Health and Human Services
Photos courtesy of Shutterstock
SOURCE:
Centers for Medicare & Medicaid Services
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Health
Join the Fight Against ALS: Register and Make a Difference
Every year, doctors tell more than 5,000 Americans they have amyotrophic lateral sclerosis, better known as ALS. It is a life-changing diagnosis. In honor of ALS Awareness Month, learn more about the disease.
Last Updated on June 30, 2026 by Daily News Staff
Join the Fight Against ALS: Register and Make a Difference
(Feature Impact) Every year, doctors tell more than 5,000 Americans they have amyotrophic lateral sclerosis, better known as ALS. It is a life-changing diagnosis.
Still, it’s hard to estimate the total number of ALS cases in the United States. No one knows what causes most cases of ALS, something the U.S. National ALS Registry is working to change.
In honor of ALS Awareness Month, learn more about the registry, how the information is used and how to enroll if you have ALS.
What is ALS?
ALS is a disease that affects the nerve cells that make muscles work in the body. This disease makes the nerve cells stop working and die. The nerves lose the ability to trigger specific muscles, which causes the muscles to become weak and leads to paralysis.
What is the registry?
“The National ALS Registry is a program of, by and for those living with ALS,” said Dr. Paul Mehta, principal investigator of the Registry. “The program collects, manages and analyzes data about people with ALS in the United States. It includes data and information provided by individuals who choose to register and complete the risk factor surveys.”
What is its purpose?
The main purpose is to gather information that can be used in the fight against ALS. The information is used to:
- Estimate the number of new cases of ALS diagnosed each year
- Estimate the number of people who have ALS at any given point in time
- Better understand who gets ALS and what factors affect the disease
- Enhance research that could improve care for people with ALS
How do researchers use the data?
Researchers can use the data to look for disease pattern changes over time and try to identify whether there are common risk factors among people with ALS. Since 2010, the registry has funded more than a dozen studies exploring potential ALS risk factors.
What does participation look like?
Individuals with ALS are encouraged to share their stories, enhancing ALS data and supporting research efforts. People living with ALS can help the National ALS Registry by completing up to 18 risk factor surveys, covering topics such as occupational history and environmental exposures, which help create a more complete picture of their ALS story.
How can someone join?
Anyone living with ALS can enroll. By joining and taking the risk factor surveys, individuals living with ALS can help future generations.
Get started at cdc.gov/als.
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