Community

Janssen Launches Health Equity Campaign in Partnership with Award-Winning Radio Host D.L. Hughley to Raise Awareness About Multiple Myeloma Among Black Communities

Published

2 years ago

March 6, 2023

That’s My Word™ campaign issues national call to action for earlier diagnosis and treatment to address the disproportionate impact of multiple myeloma among at-risk communities

HORSHAM, Pa. /PRNewswire/ — The Janssen Pharmaceutical Companies of Johnson & Johnson announced today the launch of That’s My Word™ to raise awareness of and help to drive better health outcomes for multiple myeloma among at-risk populations. A national campaign bringing together trusted voices among Black communities, including those at risk of multiple myeloma, care partners, healthcare professionals, advocacy groups and award-winning radio host and comedian D.L. Hughley, That’s My Word™ aims to be a source of both information and hope by sharing resources specifically for Black patients and their care partners about this rare blood cancer.

Janssen Launches Health Equity Campaign DL Hughley — Janssen Launches Health Equity Campaign in Partnership with Award-Winning Radio Host D.L. Hughley to Raise Awareness About Multiple Myeloma Among Black Communities

Delays in diagnosis and treatment initiation, as well as unequal access to newer and more advanced medicines, are part of the challenging reality that creates significant health disparities in multiple myeloma.¹

Each year, approximately 35,000 people are diagnosed with multiple myeloma in the United States, and more than 20 percent of all cases occur in Black people, with cases on the rise.²^,3
Multiple myeloma is often diagnosed in people over the age of 60 years, but Black people are typically diagnosed 5-10 years earlier.²^,4
While Black patients are less likely to have more aggressive disease, they are twice as likely to die from multiple myeloma because it is often undetected until it has progressed to more advanced stages.¹^,³
Yet, studies show that with early diagnosis, early treatment initiation, and equal access to care, Black patients can achieve better outcomes.⁵

Comedian and award-winning radio host D.L. Hughley is partnering with Janssen to empower Black communities with information and encourage better self-advocacy for their health. Hughley’s personal experience with cancer, including his father and sister, motivated him to take his own health seriously many years ago.

“Cancer has touched so many of us, but we need greater awareness of diseases that are disproportionately affecting and killing Black people, like multiple myeloma,” said D.L. Hughley. “I am so inspired by people who are living with this disease and who have become actively involved in their health decisions, caregivers who have experienced incredible loss yet push on, and healthcare professionals who are helping to address the complex relationship that our community has with the healthcare system. I am honored to work in partnership with the Black community through That’s My Word™ to raise awareness of critical information and encourage action in a way that can potentially save lives.”

Janssen continues to partner with the International Myeloma Foundation (IMF), which is equally passionate in combating healthcare disparities in multiple myeloma. Together, Janssen and the IMF are encouraging people to make Multiple Myeloma Promises, or pledges, to commit to learning more about multiple myeloma and be proactive with their health to help catch it early and treat it, which hopefully will lead to better health outcomes. Janssen will donate one dollar to the IMF, up to $50,000, for each promise made through the campaign at @thatsmywordMM on Facebook and Instagram.

“Multiple myeloma is too often still diagnosed late or remains undiagnosed altogether in Black communities. While it’s important for patients to be vocal about what they are experiencing, it is equally important that healthcare providers listen to their patients to recognize the signs and symptoms that support prompt and accurate diagnosis,” said Joseph Mikhael, MD, Chief Medical Officer, International Myeloma Foundation and Professor, Translational Genomics Research Institute, City of Hope Cancer Center.³^,⁴ “Through initiatives such as That’s My Word™, we share a commitment to reaching underserved patient communities that can help result in better education and better outcomes.”

As a leader in the treatment of multiple myeloma, Janssen believes all patients should be treated equally with comprehensive cancer care as part of its commitment to eradicate racial and social injustice as a public health threat, and Our Race to Health Equity.

“We launched That’s My Word™ to change the trajectory of multiple myeloma in Black communities, because we know the impact of health disparities is exacerbated for people who are living with this incurable blood cancer,” said Tyrone Brewer, President, Oncology, Janssen Biotech, Inc. “We are grateful for the partnerships we’ve built within the community because no entity can do this alone. We will continue to work toward a future in which improved outcomes are the reality for all patients, as part of our mission to reimagine care so that patients can redefine living.”

To get involved, follow the conversation on social media using the hashtags #ThatsMyWordMM and #MMPromise.

About the Janssen Pharmaceutical Companies of Johnson & Johnson
At Janssen, we’re creating a future where disease is a thing of the past. We’re the Pharmaceutical Companies of Johnson & Johnson, working tirelessly to make that future a reality for patients everywhere by fighting sickness with science, improving access with ingenuity, and healing hopelessness with heart. We focus on areas of medicine where we can make the biggest difference: Cardiovascular, Metabolism, & Retina; Immunology; Infectious Diseases & Vaccines; Neuroscience; Oncology; and Pulmonary Hypertension.

Learn more at www.janssen.com. Follow us at @JanssenUS. Janssen Biotech, Inc. is part of the Janssen Pharmaceutical Companies of Johnson & Johnson.

American Cancer Society Cancer Facts & Figures for African American/Black People. American Cancer Society 2022-2024. https://www.cancer.org/content/dam/cancer-org/research/cancer-facts-and-statistics/cancer-facts-and-figures-for-african-americans/2022-2024-cff-aa.pdf. Accessed January 2023.
What is Multiple Myeloma. International Myeloma Foundation 2022. https://www.myeloma.org/what-is-multiple-myeloma. Accessed January 2023.
Disparities in African Americans. International Myeloma Foundation 2022. https://www.myeloma.org/IMF-Diversity-Equity-Inclusion-Policy/disparities-african-americans. Accessed January 2023.
Multiple Myeloma in African Americans. The Multiple Myeloma Research Foundation. https://themmrf.org/2019/08/multiple-myeloma-in-african-americans/. Published January 2020. Accessed January 2023.
Dong J, Hari P. Black patients with multiple myeloma have better survival than white patients when treated equally: a matched cohort study. Blood Cancer Journal. 2022.

SOURCE The Janssen Pharmaceutical Companies of Johnson & Johnson

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The Bridge

An upward spiral – how small acts of kindness and connection really can change the world, according to psychology research

Published

2 days ago

December 1, 2024

The Conversation

kindness — Strengthening relationships strengthens communities, which influences societies. Charles Gullung/The Image Bank via Getty Images

Liza M. Hinchey, Wayne State University

Political chasms, wars, oppression … it’s easy to feel hopeless and helpless watching these dark forces play out. Could any of us ever really make a meaningful difference in the face of so much devastation?

Given the scale of the world’s problems, it might feel like the small acts of human connection and solidarity that you do have control over are like putting Band-Aids on bullet wounds. It can feel naive to imagine that small acts could make any global difference.

As a psychologist, human connection researcher and audience member, I was inspired to hear musician Hozier offer a counterpoint at a performance this year. “The little acts of love and solidarity that we offer each other can have powerful impact … ” he told the crowd. “I believe the core of people on the whole is good – I genuinely do. I’ll die on that hill.”

I’m happy to report that the science agrees with him.

Research shows that individual acts of kindness and connection can have a real impact on global change when these acts are collective. This is true at multiple levels: between individuals, between people and institutions, and between cultures.

This relational micro-activism is a powerful force for change – and serves as an antidote to hopelessness because unlike global-scale issues, these small acts are within individuals’ control.

two young men in conversation, seated at a table — A personal connection makes you more willing to find common ground. Hinterhaus Productions/DigitalVision via Getty Images

Abstract becomes real through relationships

Theoretically, the idea that small, interpersonal acts have large-scale impact is explained by what psychologists call cognitive dissonance: the discomfort you feel when your actions and beliefs don’t line up.

For example, imagine two people who like each other. One believes that fighting climate change is crucial, and the other believes that climate change is a political ruse. Cognitive dissonance occurs: They like each other, but they disagree. People crave cognitive balance, so the more these two like each other, the more motivated they will be to hear each other out.

According to this model, then, the more you strengthen your relationships through acts of connection, the more likely you’ll be to empathize with those other individual perspectives. When these efforts are collective, they can increase understanding, compassion and community in society at large. Issues like war and oppression can feel overwhelming and abstract, but the abstract becomes real when you connect to someone you care about.

So, does this theory hold up when it comes to real-world data?

Small acts of connection shift attitudes

Numerous studies support the power of individual acts of connection to drive larger-scale change.

For instance, researchers studying the political divide in the U.S. found that participants self-identifying as Democrats or Republicans “didn’t like” people in the other group largely due to negative assumptions about the other person’s morals. People also said they valued morals like fairness, respect, loyalty and a desire to prevent harm to others.

I’m intentionally leaving out which political group preferred which traits – they all sound like positive attributes, don’t they? Even though participants thought they didn’t like each other based on politics, they also all valued traits that benefit relationships.

One interpretation of these findings is that the more people demonstrate to each other, act by act, that they are loyal friends and community members who want to prevent harm to others, the more they might soften large-scale social and political disagreements.

Even more convincingly, another study found that Hungarian and Romanian students – people from ethnic groups with a history of social tensions – who said they had strong friendships with each other also reported improved attitudes toward the other group. Having a rocky friendship with someone from the other group actually damaged attitudes toward the other ethnic group as a whole. Again, nurturing the quality of relationships, even on an objectively small scale, had powerful implications for reducing large-scale tensions.

In another study, researchers examined prejudice toward what psychologists call an out-group: a group that you don’t belong to, whether based on ethnicity, political affiliation or just preference for dogs versus cats.

They asked participants to reflect on the positive qualities of someone they knew, or on their own positive characteristics. When participants wrote about the positive qualities of someone else, rather than themselves, they later reported lower levels of prejudice toward an out-group – even if the person they wrote about had no connection to that out-group. Here, moving toward appreciation of the other, rather than away from prejudice, was an effective way to transform preconceived beliefs.

So, small acts of connection can shift personal attitudes. But can they really affect societies?

From one-on-one to society-wide

Every human being is embedded in their own network with the people and world around them, what psychologists call their social ecology. Compassionate change at any level of someone’s social ecology – internally, interpersonally or structurally – can affect all the other levels, in a kind of positive feedback loop, or upward spiral.

For instance, both system-level anti-discrimination programming in schools and interpersonal support between students act reciprocally to shape school environments for students from historically marginalized groups. Again, individual acts play a key role in these positive domino effects.

a chain of colorful dominos falling one by one — Small positive steps can build off each other in a chain reaction. bee32/iStock via Getty Images Plus

Even as a human connection researcher, I’ve been surprised by how much I and others have progressed toward mutual understanding by simply caring about each other. But what are small acts of connection, after all, but acts of strengthening relationships, which strengthen communities, which influence societies?

In much of my clinical work, I use a model called social practice — or “intentional community-building” – as a form of therapy for people recovering from serious mental illnesses, like schizophrenia. And if intentional community-building can address some of the most debilitating states of the human psyche, I believe it follows that, writ large, it could help address the most debilitating states of human societies as well.

Simply put, science supports the idea that moving toward each other in small ways can be transformational. I’ll die on that hill too.

Liza M. Hinchey, Postdoctoral Research Fellow in Psychology, Wayne State University

This article is republished from The Conversation under a Creative Commons license. Read the original article.

The Bridge is a section of the STM Daily News Blog meant for diversity, offering real news stories about bona fide community efforts to perpetuate a greater good. The purpose of The Bridge is to connect the divides that separate us, fostering understanding and empathy among different groups. By highlighting positive initiatives and inspirational actions, The Bridge aims to create a sense of unity and shared purpose. This section brings to light stories of individuals and organizations working tirelessly to promote inclusivity, equality, and mutual respect. Through these narratives, readers are encouraged to appreciate the richness of diverse perspectives and to participate actively in building stronger, more cohesive communities.

https://stmdailynews.com/the-bridge

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Community

Moana 2: dazzling sequel redefines the Disney princess with strength, independence and leadership

Published

3 days ago

November 30, 2024

The Conversation

Laura O’Flanagan, Dublin City University

Moana 2

Moana isn’t a typical Disney heroine, stating quite clearly in the latest instalment, Moana 2, that she is not a princess. Her friend Maui’s response – “Well, a lot of people think you are” – elicited knowing laughter from the audience when I saw the film. This shows just how much Moana has redefined what it means to be a Disney princess.

Unconcerned with traditional tropes like ballgowns and romance, Moana embodies strength, independence and a deep commitment to environmental stewardship. She powerfully demonstrates how human action can effect real environmental healing and transformation; through collaborating with the forces of nature, the world can be saved from environmental catastrophe.

In Moana 2, her commitment to protecting the Earth again takes centre stage – but this time going even further to deliver a powerful call for collective action, to restore environmental harmony and strengthen human interconnectedness. Answering the call of her ancestors, Moana sets out on a treacherous ocean voyage to ensure the survival of her island against the wishes of Nalo, a powerful storm god who is determined that humans should remain isolated from one another.

file 20230706 17 460x2d.png?ixlib=rb 4.1

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Moana, of course, shares several traits with earlier Disney princesses. Like Belle from Beauty and the Beast and Jasmine from Aladdin, she dreams of a life beyond the confines of her immediate world. Similar to Ariel from The Little Mermaid and Mulan, she sets off on a dangerous adventure far from home. And like all the princesses before her, Moana has animal companions – Pua the pig and Hei-Hei the chicken. But what sets Moana apart is how her connection to nature is portrayed.

Disney has a long legacy of linking its princesses with nature, from Snow White and Cinderella, who recruit small animals to assist with their domestic chores, to Elsa in Frozen who can magically control ice and snow. But Moana’s relationship with the natural world is more than just symbolic interaction. Her bond with nature is an active, collaborative partnership. https://www.youtube.com/embed/qkgkUCqEum4?wmode=transparent&start=0

This is not a typical Disney princess story of self-discovery, but of active engagement with the world around her. In the first film, Moana embarks on a dangerous oceanic journey to “restore the heart of Te Fiti” – that is, repair the environmental damage caused by the trickster demi-god Maui and restore harmony to the natural world. In doing so, she sets her island and the Disney princess in a new direction.

In the sequel, Moana is more mature, more experienced as a wayfinder, and is a highly respected member of her island community. This new story sees her lead a group of fellow islanders on a voyage to find the lost island of Motufetu and reconnect isolated island communities across the ocean. Through this, she demonstrates the power of collective action. She partners with human and non-human entities in pursuit of these goals, which will lead to better environmental outcomes and greater human connection.

Instead of simply reacting to or passively experiencing nature, as many of her Disney predecessors have, Moana works with forces of nature including the ocean, which is a key character in both films. Unlike typical 3D animation processes, where water is created through automated particle simulations, Disney artists have animated the ocean in Moana as a character, giving it more human-like movement and personality.

This approach allows the ocean to become a true partner in Moana’s journey, guiding her and actively engaging with her in meaningful ways as she restores balance to the environment and connects isolated island communities.

This is a visually stunning sequel that recaptures and builds on the magic of the first film, and should be seen on a large screen. Dazzling artistry fills every frame – in particular, bioluminescent sea life is spectacularly rendered. Polynesian culture is represented in more detail, with traditional rituals, dancing, artwork and singing giving the film a weightier authenticity.

As a musical, the songs are not initially quite as catchy as in the first film, but time will tell if they resonate with audiences. The characters have grown since we last encountered them. Moana flourishes in her role as both a leader and a protector of the Earth. We also see her develop into the role of “big sister” – to her younger sibling Simea and, symbolically, to all who she encounters.

There are heartfelt callbacks to the first film as we see Moana share her knowledge of the ocean and pass on the wisdom she has received from her grandmother, now in spirit, who is portrayed beautifully onscreen in human form and as a manta ray. Moana’s relationship with the egotistical Maui is again a source of comedy, but now contains an emotional depth that comes from a platonic friendship with roots.

Through Moana, we have moved into a new era of the Disney princess. Physically strong and fit, a skilled navigator and blossoming leader, she is a heroine on screen and in the world of the film, where she is depicted on decorative tapa cloths alongside gods and myths. She announces herself as “Moana of the land and of the sea”.

In her seminal work Feminism and The Mastery of Nature, ecofeminist and environmental philosopher Val Plumwood wrote:

If we are to survive into a liveable future, we must take into our own hands the power to create, restore and explore different stories, with new main characters, better plots, and at least the possibility of some happy endings.

Through stories of human interconnectedness, ecological harmony and respect for the natural world, Disney’s Moana 2 appears to be doing just that.

Laura O’Flanagan, PhD Candidate in the School of English, Dublin City University

This article is republished from The Conversation under a Creative Commons license. Read the original article.

Looking for an entertainment experience that transcends the ordinary? Look no further than STM Daily News Blog’s vibrant Entertainment section. Immerse yourself in the captivating world of indie films, streaming and podcasts, movie reviews, music, expos, venues, and theme and amusement parks. Discover hidden cinematic gems, binge-worthy series and addictive podcasts, gain insights into the latest releases with our movie reviews, explore the latest trends in music, dive into the vibrant atmosphere of expos, and embark on thrilling adventures in breathtaking venues and theme parks. Join us at STM Entertainment and let your entertainment journey begin! https://stmdailynews.com/category/entertainment/

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The Hidden Harm of Civil Legal Issues: A path to help Americans in need

Many Americans face unresolved civil legal issues, often unaware of available assistance, leading to disadvantages in legal systems despite the existence of free help from legal aid organizations.

Published

1 week ago

November 25, 2024

Daily News Staff

Civil Legal Issues

(Family Features) Your landlord is threatening to evict you, while maintenance issues in your apartment complex have been ignored, making it difficult to get to work and pay the bills. That’s a civil legal issue.

You know you’re qualified for Veterans or Social Security benefits, but you can’t seem to get through the red tape. That’s a civil legal issue.

The mobile home park where you lease a space for your manufactured home is kicking you out, and you may lose your investment in the home as well as a place to live. That’s a civil legal issue.

A survey from the Legal Services Corporation (LSC) found many Americans who experienced a civil legal matter within the past three years (59%) didn’t seek legal help from an attorney who could have been pivotal in getting their issues resolved.

A misunderstanding found in the survey is that more than half of American adults (56%) wrongly believe they have a right to a lawyer in a civil case. In fact, Americans only have a right to a lawyer when they have been accused of a crime. This misperception means some people may end up in civil court at a big disadvantage in a complex legal system because they don’t have legal representation.

Civil legal issues can be life-changing. Even though people do not have a right to a lawyer in these cases, free help is available for many low-income people who cannot afford to hire a lawyer. Celebrating its 50th anniversary this year, LSC supports 130 independent, nonprofit legal aid programs in every state, the District of Columbia and the territories. It launched the Protecting the Promise outreach campaign, aimed at ensuring legal aid is available to low-income Americans who need it.

Legal aid attorneys help with the most common civil legal issues people in the national survey said they faced in the last three years, even if they didn’t recognize them as legal issues. Those were debt collection (63%), job loss (56%) and issues surrounding natural disasters (52%).

In addition to these issues, legal aid organizations supported by LSC also help with family law issues like divorce, child custody and domestic violence.

Many Americans don’t realize when they could benefit from legal assistance. A significant portion of Americans (1 in 3) who didn’t seek legal help for civil matters in the past three years said they thought they could deal with the problem on their own or didn’t think the problem was serious enough for legal help. Additionally, almost one-quarter didn’t reach out for legal assistance because they didn’t think an attorney could help with their problems.

More than three-quarters of women didn’t seek legal help when contacted by creditors or collection agencies compared to fewer than half of men who didn’t seek help.

Money is a big barrier. Among those who did not seek legal assistance, nearly one-third did not do so because they were worried about the cost.

Unresolved civil legal issues can pile up, hurting individuals, families and even entire communities. For people with low incomes, getting help can be difficult. Hiring a lawyer can be expensive, and most people don’t know where to start.

To see if you’re eligible for civil legal aid or to find a legal aid organization in your area, visit lsc.gov.

Photos courtesy of Shutterstock

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SOURCE:
Legal Services Corporation