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Illuminating Global Landmarks: Make NF Research Visible

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Global landmarks are set to illuminate in a stunning display of support for World NF Awareness Day. The Children’s Tumor Foundation (CTF) has organized the “Shine a Light on NF” campaign, which will see nearly 400 famous buildings, bridges, waterfalls, castles, and architectural icons light up in blue and green, the official colors of the neurofibromatosis (NF) cause.

Global landmark illuminated in blue and green for neurofibromatosis and schwannomatosis awareness, highlighting the importance of NF research visibility.
Young man living with neurofibromatosis type 1 surrounded by NF researchers and clinicians

NF is a group of genetic conditions that affects approximately 4 million people worldwide. It is known as either neurofibromatosis or schwannomatosis, and it causes tumors to grow on nerves throughout the body. The impact of NF can be severe, leading to disabilities such as blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. Despite the significant challenges it poses, there is currently no cure for NF. However, the “Shine a Light on NF” campaign aims to raise awareness and highlight the crucial need for scientific research funding.

The “Shine a Light on NF” campaign, launched by the Children’s Tumor Foundation, has grown substantially over the years. The foundation works in partnership with NF organizations, medical and research institutions, and corporate and media partners around the world to expand global awareness of this rare set of genetic conditions. The involvement of internationally recognized landmarks is a testament to the campaign’s reach.

Landmarks such as Niagara Falls, the National Theatre in London, The City of Arts and Sciences in Valencia, and The David in Florence are among the many iconic sites that will light up in blue and green this year. This show of unity and support not only raises awareness but also sends a powerful message of solidarity to those affected by NF.

In conjunction with World NF Awareness Day, the Children’s Tumor Foundation is also launching its “Make NF Research Visible” campaign. This initiative focuses on the transformative potential of scientific research in the fight against NF. By highlighting advancements in NF scientific research and clinical care, the campaign showcases the crucial role these efforts play in improving patient outcomes.

As part of the “Make NF Research Visible” campaign, a collection of portraits and stories featuring clinicians, researchers, and patients is being shared. These compelling narratives demonstrate how increased visibility can drive further progress in NF research and provide support to those affected by the condition.

Simon Vukelj, Chief Marketing Officer of the Children’s Tumor Foundation, emphasizes the importance of the “Make NF Research Visible” campaign, stating that it aims to inspire greater support and drive further advancements. By shining a light on the incredible work being done by researchers and clinicians, the foundation aims to brighten the path forward for everyone affected by NF.

Carson McNall, a 16-year-old living with neurofibromatosis type 1, shares his experiences and hopes for a future where NF can be cured. Carson describes the chaos of living with NF at such a young age and dreams of a life free from constant appointments and worries about the future. The “Make NF Research Visible” campaign aims to turn these dreams into reality by amplifying the voices of patients and showcasing how research can transform lives within the NF community.

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Neurofibromatosis encompasses a group of genetic conditions that lead to the growth of tumors on nerves throughout the body. The Children’s Tumor Foundation has initiated campaigns like “Shine a Light on NF” and “Make NF Research Visible” to raise awareness and underscore the importance of advancements in scientific research. These efforts highlight the impact of NF on public awareness, diagnosis, clinical care, and ongoing research endeavors towards finding a cure.

As the world witnesses the illumination of global landmarks and engages with the “Make NF Research Visible” campaign, it is a reminder of the power of unity and the potential for scientific advancements to bring hope and transformation to those affected by neurofibromatosis.

For the full, global list of locations Shining a Light on NF, visit ctf.org/shinealight.

For more information about NF Awareness Month and Make NF Visible, visit makenfvisible.org.

For more information about the Children’s Tumor Foundation, visit ctf.org.

About the Children’s Tumor Foundation
The Children’s Tumor Foundation is the world’s leading organization dedicated to funding and driving innovative research that will result in effective treatments for the millions of people worldwide living with NF, a group of genetic conditions that causes tumors to grow on nerves throughout the body. Through collaboration with the scientific community, pharmaceutical and biotech industries, and other key partners, we work diligently to accelerate research and development efforts, ensuring that promising treatments reach those who need them. One in every 2,000 people is born with some type of neurofibromatosis or schwannomatosis, which may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, or cancer. NF affects all populations equally, and while there is no cure yet, the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit: ctf.org.

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SOURCE Children’s Tumor Foundation

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Back-to-School Checklist: Ensuring a Healthy Start to the School Year

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As summer winds down, the buzz of back-to-school preparations begins. It’s a time filled with shopping for school supplies, adjusting to earlier bedtimes, and setting up kids for a successful school year. While we often think of pencils, notebooks, and new backpacks, there’s another crucial aspect to consider—your child’s health. Ensuring they are physically and mentally prepared is just as important as having the right school supplies. Here’s a comprehensive health checklist parents should consider to ensure their children are set up for a healthy school year.

boy looking on a tidied desk at school.
Photo by Oleksandr P on Pexels.com

Annual Physicals and Required Paperwork

A yearly physical exam is essential to assess your child’s health and development. It’s a perfect time to update any necessary medication plans with the school nurse and handle all the required health paperwork. These exams are vital for catching health issues before they become problematic, ensuring your child is in the best shape to start the school year.

Up-to-Date Vaccinations

Make sure your child’s vaccinations are current. This not only includes the standard childhood vaccines but also the flu shot, COVID-19 vaccinations, and possibly the HPV vaccine. Checking in with your pediatrician can help clarify what vaccinations your child needs before heading back to school.

Focus on Mental Health

The transition back to school can be a stressful time for children and teens, potentially triggering anxiety and depression. Observing your child’s behavior for signs of stress and discussing any concerns with health professionals can help manage these issues early. Regular conversations about their feelings can also make a big difference.

Sports Physicals

For children involved in sports, a specific physical examination is necessary to ensure they can safely participate in physical activities. This physical includes assessments of overall health with a focus on cardiac and pulmonary functions, which are crucial for preventing emergencies such as sudden cardiac arrests in young athletes.

Concussion Awareness

Parents and young athletes should be informed about the risks and signs of concussions—common in sports like football, soccer, and cheerleading. Knowing what symptoms to look for and how to respond if a concussion occurs is essential for every parent and coach.

Proper Sleep Habits

Adequate sleep is foundational for academic success and overall health. Establishing a solid bedtime routine that allows for enough sleep is crucial. This might also mean making the bedroom a screen-free zone to avoid the sleep-disrupting effects of blue light from electronics.

Backpack Safety

Choose a lightweight backpack and ensure that it does not exceed 20% of your child’s body weight to avoid back problems. Opting for designs with padded shoulder straps and a waist belt can distribute weight more evenly.

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Regular Eye Exams

Vision problems can significantly affect a child’s learning ability. An annual eye exam can detect issues that might impair their ability to see clearly, which is vital for optimal learning. Even if your child has passed a school screening, a comprehensive eye exam by a professional can catch problems that screenings might miss.

Navigating Screen Time and Online Safety

As technology becomes more engrained in learning, managing screen time and understanding online safety becomes more important. Creating a media plan that balances educational and recreational screen time can help prevent sleep disruption and exposure to inappropriate content.

By integrating these health checks into your back-to-school preparations, you can help ensure your child has a healthy, productive year ahead. Remember, readiness for school isn’t just about having the right supplies—it’s also about being mentally and physically prepared for the challenges of a new academic year.

Source: Hackensack Meridian Health via Newswise

Our Lifestyle section on STM Daily News is a hub of inspiration and practical information, offering a range of articles that touch on various aspects of daily life. From tips on family finances to guides for maintaining health and wellness, we strive to empower our readers with knowledge and resources to enhance their lifestyles. Whether you’re seeking outdoor activity ideas, fashion trends, or travel recommendations, our lifestyle section has got you covered. Visit us today at https://stmdailynews.com/category/lifestyle/ and embark on a journey of discovery and self-improvement.

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  • Rebecca Washington

    Rebecca Jo is a mother of four and is a creative soul from Phoenix, Arizona, who also enjoys new adventures. Rebecca Jo has a passion for the outdoors and indulges in activities like camping, fishing, hunting and riding roller coasters. She is married to Rod Washington View all posts

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The Importance of Clean School Transportation

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The Importance of Clean School Transportation

(Family Features) Across the country, more than 25 million children ride to school each day in school buses, most of which are powered by diesel and produce harmful emissions known to cause respiratory issues like asthma and bronchitis.

An alternative energy source, like propane, can provide children with a safe, clean and healthy ride to school. As an environmentally friendly and affordable energy source that is abundantly available, propane can help achieve a cleaner today and greener tomorrow for students.

Watch this video to learn more!

https://youtube.com/watch?v=XT6vzCDdk8M%3Fsi%3DFU6ZLnpGfsIsjjUI

Consider these reasons it’s important to clean up student transportation from the experts at the Propane Education & Research Council:

  • Propane reduces emissions in exhaust that negatively impact air quality by up to 96% compared to diesel.
  • Propane school buses provide a quieter ride than diesel buses, which means it’s easier for drivers to hear potential concerns and students arrive at school calmer and ready to learn.
  • Propane warms up quickly, providing a heated cabin for a comfortable ride during colder months.
  • Propane is affordable, allowing school districts to replace aging diesel buses three times faster than transitioning to an electric bus fleet.

Learn more about clean transportation options and the benefits of propane school buses at BetterOurBuses.com .


SOURCE:
Propane Education & Research Council

Our Lifestyle section on STM Daily News is a hub of inspiration and practical information, offering a range of articles that touch on various aspects of daily life. From tips on family finances to guides for maintaining health and wellness, we strive to empower our readers with knowledge and resources to enhance their lifestyles. Whether you’re seeking outdoor activity ideas, fashion trends, or travel recommendations, our lifestyle section has got you covered. Visit us today at https://stmdailynews.com/category/lifestyle/ and embark on a journey of discovery and self-improvement.

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Going Green in Your Community

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Community Efforts

Community Efforts

(Family Features) Preserving your community for future generations can take many forms. It might mean volunteering with local organizations and participating in community improvement initiatives. Taking steps to protect the environment is another critical way to ensure your community remains safe and livable for generations to come.

These ideas show that going green can be as simple as making small modifications to everyday actions you already take.

Donating Unwanted Goods
Landfills are overflowing with items that still have plenty of useful life. Often, those discarded items could be repurposed to provide an affordable option to those who can’t afford new, full-price versions. Before loading up your trash can, consider donating things like household goods and clothing that could still serve a purpose. Numerous organizations accept gently used goods that they either distribute directly to those in need or sell to the general public, with proceeds benefiting a specific cause or population. Look into the options in your area to find the best fit for items you have that can be donated.

Rethinking Transportation
Pollution from transportation accounts for 29% of the United States’ emissions, according to the Environmental Protection Agency (EPA). That’s a higher percentage than any other category measured by the EPA. Carpooling, public transportation and even carefully planning your route are ways you can take personal accountability to help reduce the problem.

Another way to improve transportation emissions is by talking to your school district about its school bus choices. Diesel school buses are not only expensive to operate, but they are harmful to children’s health, the community and the climate, according to data compiled by the Propane Education & Research Council. Conversely, propane reduces harmful emissions that impact student health and air quality in the community. By advocating for your district to convert to a more environmentally friendly transportation option, such as propane, you can help further reduce harmful emissions in your community.

Find more information about propane-powered buses at BetterOurBuses.com.

Recycling and Composting
Another way to reduce landfill waste is recycling and composting. Many of the items you throw away can be recycled into all-new materials. For example, recycled plastic can be used in a wide range of products, from sleeping bags and backpacks to dishes and reusable water bottles. Food waste represents a large share of landfills, too. Eventually it will biodegrade, but composting what you can at home gives you nutrient-rich material you can use to support your garden or lawn with healthier soil and less need for pesticides.

Cleaning with Natural Products
Keeping your home clean takes more than a little elbow grease, but the harsh chemicals found in many household cleaners are actually quite damaging. The chemicals can be poisonous or contain allergens that negatively impact your home’s air quality. Natural cleaners are often more cost-efficient, so you can enjoy cleaner air and minimize your impact on the environment.

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Taking Advantage of Natural Light
If you’re in the habit of flipping on a light switch as you walk in a room, next time pause and consider whether you really need additional light. During daylight hours, many rooms offer more than enough natural light. Sunlight can also help warm spaces naturally when it’s cool outdoors, so throw open the curtains and let those warm, bright rays shine. If you do need additional light, consider relying on task lighting to illuminate your project rather than an overhead light that consumes more electricity.

Benefits of Propane School Buses


Over the last several decades, there have been many advances in student transportation. However, one area that could still use improvement is the number of students who ride to school on diesel buses that pollute the air. Today, there are two meaningful energy choices for clean student transportation: propane and electric. While both can achieve clean transportation, propane buses cost one-third the price of electric, allowing districts to replace their aging diesel fleet faster.

As an affordable, available and clean energy source, propane buses make practical sense. The buses reduce harmful emissions by 96% compared to diesel. They can also meet school districts’ needs with a range of up to 400 miles and the resiliency to continue operating across all terrains and in any weather. In fact, more than 1,000 school districts have already made the switch. Every day, 1.3 million children ride to school in 22,000 propane school buses across the country.

In 2022, the EPA introduced the Clean School Bus Program, which provides $5 billion over five years (2022-26) to replace existing diesel school buses with zero-emission and low-emission models.

Through three rounds of funding, the EPA program has allocated more than $2.8 billion for 8,427 electric school buses and 440 low-emissions propane buses. However, for the same amount of money that was distributed for the electric buses (about $2.77 billion), the program could have helped fund as many as 92,635 propane buses, assuming each propane bus received the $30,000 incentive.

When considering full lifecycle emissions, replacing 92,635 diesel buses with propane buses would have reduced harmful nitrogen oxide (NOx) emissions by 24,664 metric tons over the three years the program has funded buses. By comparison, replacing just 8,427 diesel buses with electric buses will reduce NOx emissions by just 2,379 metric tons over the three years.


SOURCE:
Propane Education & Research Council

Our Lifestyle section on STM Daily News is a hub of inspiration and practical information, offering a range of articles that touch on various aspects of daily life. From tips on family finances to guides for maintaining health and wellness, we strive to empower our readers with knowledge and resources to enhance their lifestyles. Whether you’re seeking outdoor activity ideas, fashion trends, or travel recommendations, our lifestyle section has got you covered. Visit us today at https://stmdailynews.com/category/lifestyle/ and embark on a journey of discovery and self-improvement.

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