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Illuminating Global Landmarks: Make NF Research Visible

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Global landmarks are set to illuminate in a stunning display of support for World NF Awareness Day. The Children’s Tumor Foundation (CTF) has organized the “Shine a Light on NF” campaign, which will see nearly 400 famous buildings, bridges, waterfalls, castles, and architectural icons light up in blue and green, the official colors of the neurofibromatosis (NF) cause.

Global landmark illuminated in blue and green for neurofibromatosis and schwannomatosis awareness, highlighting the importance of NF research visibility.
Young man living with neurofibromatosis type 1 surrounded by NF researchers and clinicians

NF is a group of genetic conditions that affects approximately 4 million people worldwide. It is known as either neurofibromatosis or schwannomatosis, and it causes tumors to grow on nerves throughout the body. The impact of NF can be severe, leading to disabilities such as blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. Despite the significant challenges it poses, there is currently no cure for NF. However, the “Shine a Light on NF” campaign aims to raise awareness and highlight the crucial need for scientific research funding.

The “Shine a Light on NF” campaign, launched by the Children’s Tumor Foundation, has grown substantially over the years. The foundation works in partnership with NF organizations, medical and research institutions, and corporate and media partners around the world to expand global awareness of this rare set of genetic conditions. The involvement of internationally recognized landmarks is a testament to the campaign’s reach.

Landmarks such as Niagara Falls, the National Theatre in London, The City of Arts and Sciences in Valencia, and The David in Florence are among the many iconic sites that will light up in blue and green this year. This show of unity and support not only raises awareness but also sends a powerful message of solidarity to those affected by NF.

In conjunction with World NF Awareness Day, the Children’s Tumor Foundation is also launching its “Make NF Research Visible” campaign. This initiative focuses on the transformative potential of scientific research in the fight against NF. By highlighting advancements in NF scientific research and clinical care, the campaign showcases the crucial role these efforts play in improving patient outcomes.

As part of the “Make NF Research Visible” campaign, a collection of portraits and stories featuring clinicians, researchers, and patients is being shared. These compelling narratives demonstrate how increased visibility can drive further progress in NF research and provide support to those affected by the condition.

Simon Vukelj, Chief Marketing Officer of the Children’s Tumor Foundation, emphasizes the importance of the “Make NF Research Visible” campaign, stating that it aims to inspire greater support and drive further advancements. By shining a light on the incredible work being done by researchers and clinicians, the foundation aims to brighten the path forward for everyone affected by NF.

Carson McNall, a 16-year-old living with neurofibromatosis type 1, shares his experiences and hopes for a future where NF can be cured. Carson describes the chaos of living with NF at such a young age and dreams of a life free from constant appointments and worries about the future. The “Make NF Research Visible” campaign aims to turn these dreams into reality by amplifying the voices of patients and showcasing how research can transform lives within the NF community.

Neurofibromatosis encompasses a group of genetic conditions that lead to the growth of tumors on nerves throughout the body. The Children’s Tumor Foundation has initiated campaigns like “Shine a Light on NF” and “Make NF Research Visible” to raise awareness and underscore the importance of advancements in scientific research. These efforts highlight the impact of NF on public awareness, diagnosis, clinical care, and ongoing research endeavors towards finding a cure.

As the world witnesses the illumination of global landmarks and engages with the “Make NF Research Visible” campaign, it is a reminder of the power of unity and the potential for scientific advancements to bring hope and transformation to those affected by neurofibromatosis.

For the full, global list of locations Shining a Light on NF, visit ctf.org/shinealight.

For more information about NF Awareness Month and Make NF Visible, visit makenfvisible.org.

For more information about the Children’s Tumor Foundation, visit ctf.org.

About the Children’s Tumor Foundation
The Children’s Tumor Foundation is the world’s leading organization dedicated to funding and driving innovative research that will result in effective treatments for the millions of people worldwide living with NF, a group of genetic conditions that causes tumors to grow on nerves throughout the body. Through collaboration with the scientific community, pharmaceutical and biotech industries, and other key partners, we work diligently to accelerate research and development efforts, ensuring that promising treatments reach those who need them. One in every 2,000 people is born with some type of neurofibromatosis or schwannomatosis, which may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, or cancer. NF affects all populations equally, and while there is no cure yet, the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit: ctf.org.

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SOURCE Children’s Tumor Foundation

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Lifestyle

Promote Safe Sharps Disposal This Back-to-School Season

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Sharps

Guidance to help students thrive this school year

(Family Features) Going back to school means new classes, new supplies, new friends and sometimes even new schools – all of which can be overwhelming. The annual back-to-school routine takes on an added layer of complexity for millions of students nationwide managing health conditions that require the use of medical sharps, such as needles, syringes or epinephrine autoinjectors.

Parents and school staff can promote safe disposal of sharps so students, faculty and other staff can focus on a happy and healthy school year with this help from SafetyIsThePoint.org.

Navigating Children’s Needs
Educating children about safe sharps disposal at school starts at home. Parents can use resources to help teach children about sharps, including the different types, with the use of online videos. Inform them on how to manage sharps, like where they should be disposed of, with a clickable map and ZIP code finder that provides local disposal rules and nearby disposal sites.

A school nurse or health services office can be a source of safe sharps disposal information and point to a designated place for used sharps. It is also essential to communicate with these offices about medical needs prior to the school year to ensure they are aware of students’ sharps usage.

Equipping Classrooms and Offices
Teachers and staff play a crucial role in promoting safe sharps disposal among students and colleagues. Educators can download and print posters and fact sheets that can be integrated into lesson plans or displayed in classrooms and offices. These materials not only educate students about household sharps and their proper disposal but can also raise awareness about the various health conditions that require their use.

For school districts with an active social media presence, sample posts can be shared online to educate students and parents alike. By leveraging digital platforms, schools can reinforce the importance of safe sharps disposal even beyond classroom walls.

Ensuring a Safe and Healthy School Year
Millions of children across the country use sharps to manage chronic health conditions like diabetes, allergies and more. Knowing how to properly dispose of used sharps is just as important as knowing how to administer them. Parents, teachers and other school staff play an invaluable role in ensuring students are protecting themselves and others from getting hurt. Students deserve to concentrate on the main point – being students – without being at risk while in the classroom.

Learn more about safe household sharps disposal this back-to-school season at SafetyIsThePoint.org.


Sharps Disposal is as Easy as 1-2-3

Because household sharps disposal rules vary state to state, it’s important to check your area’s requirements as some states prohibit disposing of sharps in household trash or recycling, instead requiring sharps to be transported to a collection center in an approved container. In general, disposal is as easy as these three steps:

  1. Place used sharps in a strong, plastic container like an empty laundry detergent or bleach bottle.
  2. When the container is 75% full, seal it tightly with duct tape and label it “Do Not Recycle.”
  3. Place the sealed container in regular household trash, if permitted in your area.

Photos courtesy of Shutterstock


SOURCE:
Safety is the Point

Our Lifestyle section on STM Daily News is a hub of inspiration and practical information, offering a range of articles that touch on various aspects of daily life. From tips on family finances to guides for maintaining health and wellness, we strive to empower our readers with knowledge and resources to enhance their lifestyles. Whether you’re seeking outdoor activity ideas, fashion trends, or travel recommendations, our lifestyle section has got you covered. Visit us today at https://stmdailynews.com/category/lifestyle/ and embark on a journey of discovery and self-improvement.

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Lifestyle

Unique, Hands-Free Ways to Soothe Your Baby

To bring baby from cries to comfort, Graco has introduced the future of innovative soothing with its Soothing Bassinet and Soothing Swing.

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(Family Features) Most parents know – or soon will – crying is completely normal for babies. Even once you’ve determined a cause for the cries, finding foolproof ways to soothe baby can be difficult.

While traditional methods of soothing like bassinets and swings are often effective, they typically require parents to always be close by to keep baby calm. Bassinets and swings with innovative, soothing technology can help provide the safest place outside your arms to ensure baby is comforted and secure, allowing busy parents to have peace of mind while managing everyday tasks.

To bring baby from cries to comfort, Graco has introduced the future of innovative soothing with its Soothing Bassinet and Soothing Swing. Using SmartSense technology, they respond to cries with thousands of soothing combinations to help create more peaceful, happy moments for you and your baby.

Find more solutions to help calm and soothe your little ones by exploring the collection at GracoBaby.com.

Soothe Baby Back to Sleep
Bassinets are recommended for newborns until they can roll over or push up (typically around 5 months old). Creating a fully immersive sleep environment, the Graco SmartSense Soothing Bassinet hears baby’s cries and responds by gradually adjusting thousands of soothing combinations to help lull baby back to sleep, including gentle motions, soft vibration, multiple speeds, white noise and calming music. Parents can also directly control the settings or stream songs and sounds via Bluetooth wireless technology. Its sleek aesthetic and woodgrain finish fit seamlessly into home decor while breathable, mesh sides and a firm, flat sleeping surface help create a safe sleep space for baby. Plus, the bassinet offers swaddle compatibility, allowing babies to sleep soundly by adapting to their needs whether swaddled or not.

Rock Your Baby to Comfort
Mimicking the way parents naturally soothe their babies, the Graco SmartSense Soothing Swing offers four unique motions – swing, rock, cradle and glide – as well as combinations of soft vibrations, speeds, white noise and calming sounds to help create more peaceful, happy moments. It boasts technology that hears your baby cry and responds in seconds with calming sound and motion. The swing also features a cozy body support made with organic cotton fabrics, three recline positions and a convertible harness with harness covers to keep your baby comfy and secure while swinging.


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Graco

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Lifestyle

6 Natural Ways to Protect Your Health

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(Family Features) Natural and plant-based remedies have been around for centuries, and for everyday treatments like minor cuts, scrapes and rashes, they can have real benefits. In fact, the global herbal medicine market is expected to reach $342 billion by 2030, according to a forecast by Research and Markets.

In North America, a green movement is spurring a large share of this growth, with consumers more inclined toward natural and plant-based medicines. Concerns about side effects, long-term impact and safety also affect the choices people are making when it comes to treating their medical concerns.

“Natural and plant-based remedies have been around for centuries, treating everything from common cold symptoms to dressing wounds and caring for injuries,” said Dr. Billy Goldberg, a New York Times’ bestselling author and emergency room physician. “As people increasingly turn to more natural tried-and-true ingredients, some companies are taking note and beginning to incorporate them into products that provide the healing power of nature.”

Goldberg and the first-aid experts at CURAD, which have made adhesive bandages since 1951, offer these suggestions for natural common ingredients that can help protect your health:

Vitamin E – Studies by the National Institute on Health have shown that vitamin E helps soothe and support skin during the healing process. Vitamin E may also help promote immunity and prevent arterial blood clots.

Aloe Vera – Few things soothe sunburn like aloe vera. With analgesic, anti-inflammatory and soothing properties, aloe vera gel helps reduce pain and inflammation. Also helpful in the healing process of cuts and scrapes, the CURAD Naturals line of adhesive bandages are infused with aloe vera in the wound pad and surface of the bandage, which is enriched with the antioxidant vitamin E to help soothe and moisturize skin.

Garlic – Used for centuries for wound healing, garlic extract has been found to improve healing time and decrease rate of infection. Ingesting garlic may also head off symptoms of the common cold and help reduce blood pressure.

Baking Soda – Bicarbonate of soda, commonly known as baking soda, can be used for more than baking. From removing stains to cleaning teeth and more, it can also be used to help treat a variety of wounds. In addition to being an odor absorber, it can be applied to insect stings and bites, such as those from bees or mosquitoes.

Whether making a paste using baking soda and water then applying to the bite or using an option like CURAD Naturals adhesive bandages featuring baking soda, the chemical compound can help soothe skin. In addition to absorbing wound odor, the bandages provide skin-friendly comfort and stretch with a four-sided seal to keep dirt and germs out.

Honey – Sweet and highly acidic, honey’s antioxidant, antibacterial and anti-inflammatory properties make it a good choice for dressing wounds since it encourages healing and prevents infections. Honey may also help soothe coughs.

Charcoal – Activated charcoal may have an antibacterial effect by absorbing harmful microbes from wounds. Similarly, it can be used to treat poisoning or drug overdose and may help with digestive problems. It’s also thought to play a role in lowering cholesterol and improving kidney function, and some dental care products use it as a whitening agent.

Learn more about natural health care and first-aid products at CURAD.com.

Photos courtesy of Getty Images


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CURAD

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