5 Rare Kidney Diseases You May Not Know About

(Family Features) While the leading cause of kidney disease is diabetes, many other factors can lead to kidney disease and failure – including a collection of rare and genetic conditions. According to the National Organization for Rare Diseases (NORD), a disease is considered rare if it affects fewer than 200,000 people in the United States. Today, 30 million Americans are living with rare diseases.

This Rare Disease Day, observed on Feb. 28 worldwide, the American Kidney Fund is committed to improving the understanding of rare kidney diseases by providing educational resources.

IgA Nephropathy
An autoimmune disease, IgA nephropathy (IgAN) is related to improper function of the immune system. IgAN causes the immune system to produce abnormal antibodies, which build up in the kidneys, triggering inflammation and reducing the kidneys’ ability to filter waste and fluid, causing damage and potentially leading to kidney failure.

According to NORD, approximately 70% of rare diseases begin in childhood, which was the case for Malkia White. She had no symptoms – the only indication of her kidney problem was protein and blood in her urine detected through a routine test. She was diagnosed with IgAN but continued living her life without any changes – the disease was so rare, little was known at the time about how to manage it.

“From 6 years old to the age of 42, I maintained my medical appointments and lived an active lifestyle,” White said. “I was an honor student. I was always in dance class. In high school, I was in a marching band and on the field hockey team. In that time period, I was being checked. It never occurred to me, or my family, to investigate or research [IgAN].”

APOL1-Mediated Kidney Disease
Known as AMKD, this is a spectrum of kidney diseases associated with variants (mutations) in the apolipoprotein L1 (APOL1) gene. Everyone has two copies of the APOL1 gene, but mutations of the gene can raise the chance of rapidly progressive kidney disease in people of western and central African descent.

Polycystic Kidney Disease
Polycystic kidney disease (PKD) is a genetic disease that causes cysts to grow inside the kidneys. There are two forms of PKD: autosomal dominant polycystic kidney disease (ADPKD) and autosomal recessive polycystic kidney disease (ARPKD). The former is more prevalent, accounting for about 9 of 10 cases of PKD.

Cystinosis
A rare, multisystem genetic disease, cystinosis accounts for nearly 5% of all childhood cases of kidney failure, although some people with cystinosis do not develop kidney disease until they’re teens or adults. Caused by mutations in the CTNS gene, cystinosis happens when cystine, a component of protein, builds up in your body’s cells. Too much cystine causes crystals to form and can damage organs including kidneys, eyes, pancreas, liver and brain.

Complement 3 Glomerulopathy
With complement 3 glomerulopathy (C3G), a part of the immune system called the complement system becomes overactive and doesn’t work properly, leading to damage and inflammation in the kidneys. Specifically, it damages the kidneys’ glomeruli, which help kidneys filter toxins out of the blood. It can cause kidney failure in about half of adults who are diagnosed with the disease.

Michelle Farley had a hard time getting her C3G diagnosis despite high blood pressure and an irregular heartbeat in her youth and suffering from daily vomiting and weekly headaches while in college. After a trip to her college medical center, she discovered her blood pressure was so high she was at risk for stroke or heart attack. Bloodwork determined she had markers for kidney disease, but she wouldn’t receive a full diagnosis until she was 25.

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“I was left undiagnosed for almost 22 years due to preconceived notions of how disabilities and sicknesses should ‘look’ on the outside and how old you need to be to have a chronic disease,” Farley said. “I think it’s important to spread awareness about rare kidney diseases so patients can be diagnosed faster and more accurately. I always wonder how long I could have maintained my native kidneys if I was diagnosed as a child.”

Learn more about rare kidney diseases and the Rare Kidney Disease Action Network by visiting kidneyfund.org.

Photo courtesy of Shutterstock

SOURCE:

American Kidney Fund

(Family Features) Millions of Americans are living with low vision, a visual impairment that can turn everyday moments – recognizing a friend’s face across the street, reading a recipe or checking a text message – into unexpected challenges.

Low vision isn’t a natural part of getting older, though the conditions that cause it do become more common with age.

Whether low vision is affecting you or a loved one, Low Vision Awareness Month is a perfect time to have your eyes examined for signs of eye diseases and to take steps to make daily life easier if you are experiencing low vision.

Consider this information from the National Eye Institute to make the most of your vision and improve your quality of life.

Understanding low vision
You may have low vision if you can’t see well enough to read, drive, recognize faces, distinguish colors or see screens clearly.

Many different eye conditions can cause low vision, but the most common causes are age-related macular degeneration, cataracts, glaucoma and diabetic retinopathy, a condition that can cause vision loss in people with diabetes.

The most common types of low vision are:

• Central vision loss (not being able to see things in the center of your vision)
• Peripheral vision loss (not being able to see things out of the corners of your eyes)
• Night blindness (not being able to see in low light)
• Blurry or hazy vision

Diagnosing low vision
Your doctor can check for low vision as part of a simple, painless comprehensive dilated eye exam. He or she will ask you to read letters that are up close and far away and will check whether you can see things in the center and at the edges of your vision.

Then eye drops are used to widen your pupils and check for other eye problems – including conditions that could cause low vision.

Low vision is usually permanent, but glasses, medicine or surgery may help with daily activities or slow progression.

Living with low vision
If you have low vision, you aren’t alone. There are steps you can take to make life easier.

For minor vision loss, simple adjustments like using brighter lights, wearing anti-glare sunglasses and using magnifiers can help. Changing the settings on your phone and computer to increase contrast, make text larger or have the device read out loud may also help.

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If your vision loss is getting in the way of everyday activities, ask your eye doctor about vision rehabilitation. These services can give you skills and resources to help manage your daily life and keep your independence. Examples include:

• Employment and job training
• Environmental modifications, like improving lighting and contrast
• Assistive devices and technologies, like magnifiers, filters and screen readers
• Adaptive strategies for daily living and independent living skills training
• Emotional support, like counseling or support groups
• Transportation and household services

Finding the right vision rehabilitation services and support may take time, but working closely with your eye doctor or care team is an important first step. Discuss your needs and goals for living with your visual impairment so they can help identify the best services for you.

For additional resources and information on vision rehabilitation, visit nei.nih.gov/VisionRehab.

Photo courtesy of Shutterstock

SOURCE:

National Eye Institute

Last Updated on January 29, 2026 by Daily News Staff

Annie Margaret, University of Colorado Boulder

How to avoid seeing disturbing video on social media and protect your peace of mind

When graphic videos like those of the recent shooting of a protester by federal agents in Minneapolis go viral, it can feel impossible to protect yourself from seeing things you did not consent to see. But there are steps you can take.

Social media platforms are designed to maximize engagement, not protect your peace of mind. The major platforms have also reduced their content moderation efforts over the past year or so. That means upsetting content can reach you even when you never chose to watch it.

You do not have to watch every piece of content that crosses your screen, however. Protecting your own mental state is not avoidance or denial. As a researcher who studies ways to counteract the negative effects of social media on mental health and well-being, I believe it’s a way of safeguarding the bandwidth you need to stay engaged, compassionate and effective.

Why this matters

Research shows that repeated exposure to violent or disturbing media can increase stress, heighten anxiety and contribute to feelings of helplessness. These effects are not just short-term. Over time, they erode the emotional resources you rely on to care for yourself and others.

Protecting your attention is a form of care. Liberating your attention from harmful content is not withdrawal. It is reclaiming your most powerful creative force: your consciousness.

Just as with food, not everything on the table is meant to be eaten. You wouldn’t eat something spoiled or toxic simply because it was served to you. In the same way, not every piece of media laid out in your feed deserves your attention. Choosing what to consume is a matter of health.

And while you can choose what you keep in your own kitchen cabinets, you often have less control over what shows up in your feeds. That is why it helps to take intentional steps to filter, block and set boundaries.

Practical steps you can take

Fortunately, there are straightforward ways to reduce your chances of being confronted with violent or disturbing videos. Here are four that I recommend:

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• Turn off autoplay or limit sensitive content. Note that these settings can vary depending on device, operating system and app version, and can change.

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• Use keyword filters. Most platforms allow you to mute or block specific words, phrases or hashtags. This reduces the chance that graphic or violent content slips into your feed.
• Curate your feed. Unfollow accounts that regularly share disturbing images. Follow accounts that bring you knowledge, connection or joy instead.
• Set boundaries. Reserve phone-free time during meals or before bed. Research shows that intentional breaks reduce stress and improve well-being.

Reclaim your agency

Social media is not neutral. Its algorithms are engineered to hold your attention, even when that means amplifying harmful or sensational material. Watching passively only serves the interests of the social media companies. Choosing to protect your attention is a way to reclaim your agency.

The urge to follow along in real time can be strong, especially during crises. But choosing not to watch every disturbing image is not neglect; it is self-preservation. Looking away protects your ability to act with purpose. When your attention is hijacked, your energy goes into shock and outrage. When your attention is steady, you can choose where to invest it.

You are not powerless. Every boundary you set – whether it is turning off autoplay, filtering content or curating your feed – is a way of taking control over what enters your mind. These actions are the foundation for being able to connect with others, help people and work for meaningful change.

More resources

I’m the executive director of the Post-Internet Project, a nonprofit dedicated to helping people navigate the psychological and social challenges of life online. With my team, I designed the evidence-backed PRISM intervention to help people manage their social media use.

Our research-based program emphasizes agency, intention and values alignment as the keys to developing healthier patterns of media consumption. You can try the PRISM process for yourself with an online class I launched through Coursera in October 2025. You can find the course, Values Aligned Media Consumption, on Coursera. The course is aimed at anyone 18 and over, and the videos are free to watch.

This story was updated on Jan. 25, 2026 to include reference to the recent shooting in Minneapolis.

Annie Margaret, Teaching Assistant Professor of Creative Technology & Design, ATLAS Institute, University of Colorado Boulder

This article is republished from The Conversation under a Creative Commons license. Read the original article.

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