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Beyond Celiac Identifies Health Disparities in Celiac Disease Awareness, Diagnosis and Treatment for Black Americans

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Last Updated on May 19, 2024 by Daily News Staff

PHILADELPHIA /PRNewswire/ — Black Americans (63%) are significantly more likely than Hispanic Americans (49%) and White Americans (47%) to have no awareness of celiac disease and/or gluten-sensitivity, suggesting potential health inequities in both diagnosis and treatment, according to a nationwide benchmark survey conducted by The Harris Poll on behalf of Beyond Celiac, the leading catalyst for a celiac disease cure. Other research indicates celiac disease diagnosis and treatment disparities for Black Americans.

A serious autoimmune condition that causes damage to the small intestine resulting in debilitating symptoms, celiac disease, if left untreated, can lead to a number of long-term health problems including infertility and some types of cancer. Celiac disease affects one in 133 Americans.

Other key findings about Black Americans and celiac disease from the 2022 Beyond Celiac Survey Report

indicating lack of awareness and health information about celiac disease and/or gluten-sensitivity include:

  • Only 8% of Black Americans know that celiac disease often runs in families, compared to 21% of Hispanic Americans and 24% of White Americans.
  • Only 37% of Black Americans, compared to 52% of Hispanic Americans and 58% of White Americans, realize that following a strict 100% gluten-free diet is how someone with celiac disease controls it today.
  • Only 33% of Black Americans are aware that someone with celiac disease who strictly follows a gluten-free diet still has to worry about experiencing celiac disease symptoms or health conditions caused by it, whereas 41% of Hispanic Americans and 56% of White Americans know it.

“Celiac disease is not only mis-understood, it is also misdiagnosed. We know equal access to healthcare information, diagnosis and treatment is a concern on many levels including for people of color. These inequities place Black Americans at greater risk for poor health outcomes especially when it comes to a condition like celiac disease which is hard to diagnose and has no treatment or cure,” Beyond Celiac CEO Alice Bast said.

Additional Disparity Research

In a study by the University of Chicago and Harvard School of Public Health, researchers found that Black Americans who have symptoms associated with celiac disease have 90% decreased odds of receiving the appropriate follow-up for diagnosis.

At the University of Alabama at Birmingham, a new registry of celiac disease patients showed that Black Americans with biopsy-confirmed celiac disease were more likely than non-Hispanic White Americans to have negative results on the most commonly-used diagnostic blood test for celiac disease, the anti-tissue transglutaminase immunoglobulin A (TTG) blood test. A positive TTG test will often trigger an endoscopy and biopsy for celiac disease diagnosis. The study raised the question of whether further confirmatory testing for celiac disease is deterred in Black Americans in general clinical practice. Eighty percent of Black patients with biopsy-confirmed celiac disease in the registry had TTG test results that were less than the upper limit of normal, compared to about 9 percent of non-Hispanic White patients in the registry. Additionally Black patients were much less likely to have tests for the genes associated with celiac disease.

Moving Forward

“We believe is important that all Americans understand the symptoms of celiac disease so they can advocate for their own health, including gaining an accurate diagnosis and the treatment needed to live a healthy life,” Bast said. “Beyond Celiac is taking action to increase awareness, diagnosis and treatment for Black Americans.” Two examples of this action are the NMQF project and Voices of Celiac Disease Project.

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In partnership with the National Minority Quality Forum (NMQF), Beyond Celiac is examining and addressing health inequities in the diagnosis and treatment of celiac disease. Beyond Celiac and NMQF, a leading advocacy organization on issues of health disparity, are investigating the extent of undiagnosed celiac disease, particularly among non-Caucasians, through analysis of Medicare and Medicaid data. The goal is to map celiac disease across the United States to drive diagnosis and ensure clinical trials include a diverse, representative patient population.

In the Beyond Celiac Voices of Celiac Disease project, non-whites with celiac disease have shared stories of being dismissed by physicians who told them they could not have celiac disease because of their race and, thus delaying diagnosis due to race.

The Harris Poll Survey Methodology

This survey was conducted online within the United States by The Harris Poll on behalf of Beyond Celiac from February 8-10, 2022 among 2,039 adults ages 18 and older. The sampling precision of Harris online polls is measured by using a Bayesian credible interval.  For this study, the sample data is accurate to within + 2.8 percentage points using a 95% confidence level. For complete survey methodology, including weighting variables and subgroup sample sizes, please contact cbaker@beyondceliac.org

About Beyond Celiac

Founded in 2003, Beyond Celiac is the leading catalyst for a celiac disease cure in the United States, serving as a patient advocacy and research-driven organization working to drive diagnosis and accelerate the discovery of new treatments. By engaging with the top scientists in the field, making the right investments in research and supporting the broad community of those with celiac disease and gluten sensitivity, Beyond Celiac envisions a world in which people can live healthy lives and eat without fear – a world Beyond Celiac. www.BeyondCeliac.org.

SOURCE Beyond Celiac

Author

  • Rod Washington

    Rod: A creative force, blending words, images, and flavors. Blogger, writer, filmmaker, and photographer. Cooking enthusiast with a sci-fi vision. Passionate about his upcoming series and dedicated to TNC Network. Partnered with Rebecca Washington for a shared journey of love and art.

    View all posts

Rod: A creative force, blending words, images, and flavors. Blogger, writer, filmmaker, and photographer. Cooking enthusiast with a sci-fi vision. Passionate about his upcoming series and dedicated to TNC Network. Partnered with Rebecca Washington for a shared journey of love and art.

health and wellness

Progress, Not Perfection: How Healthy Habits Can Stack Up One Step at a Time

The article emphasizes that achieving better health relies on progress, not perfection. It advocates for realistic goals and highlights tools like My Life Check for personalized health assessments. Small, manageable changes in diet, exercise, sleep, and stress management can significantly impact overall well-being, making healthy habits more attainable and sustainable.

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Last Updated on April 1, 2026 by Daily News Staff

Healthy Habits .

Progress, Not Perfection: How Healthy Habits Can Stack Up One Step at a Time

(Feature Impact) Despite the best of intentions, it’s common for plans to build healthier habits to fall flat. Often, the culprit isn’t a lack of motivation or discipline; rather, it’s unrealistic expectations.

Overhauling your lifestyle requires a level of commitment that isn’t always practical. Understanding your personal health needs and the challenges you need to overcome can help give you a more realistic roadmap toward better health.

Tools to Guide You

Every plan needs a starting point and there are many reputable sources that can help guide you toward a plan that addresses your personal health needs.

For example, the American Heart Association introduced My Life Check, a simple, free tool to help individuals understand their heart health and what’s driving it. Users answer simple questions about their daily habits and health factors to get a personalized Heart Health Score in minutes.

The results are private and downloadable, giving you full control of your information. The tool turns big goals into small, specific actions you can start right away. Knowing your numbers relative to your heart health (and where you are in comparison to target ranges for optimal health) can help you decide how to build a better map to get you where you want to be.

While the report is customized to each individual, no personal data is stored and answers are only used to calculate health scores and provide personalized recommendations and practical steps to improve your health, so you can use your results to focus on what matters most to you. Every small step you take, such as moving more, eating smarter, sleeping better or managing stress, can add up over time.

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Finding Your Path

Once you’re armed with data and know where you stand on your heart health numbers, small steps become clearer and more manageable. That knowledge makes it easier to choose one area to focus on, such as getting more sleep, taking daily walks or adding more color to your meals.

Healthy changes don’t need to be expensive or complicated. The best habits are ones that fit real life when every action you take moves you closer to your goals.

Staying motivated and on track is also easier when you can check back in, see your progress and realize the steps you’re taking are making an impact. Checking in every few months to see how you can grow gives you the chance to celebrate your progress, learn from challenges and keep building lasting habits that feel good.

To get started with personalized tips to set your own health goals, visit heart.org/mylifecheck.

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Healthy Habits for Everyday Life

Eat Smart
Choose foods that help you feel your best, one meal at a time. Add more color to your plate and focus on balance, not restriction. Simple, affordable swaps can make a real difference.

Smart Tip: Aim for an overall healthy eating pattern that includes whole foods, fruits and vegetables, lean protein, nuts, seeds and cooking in non-tropical oils such as olive and canola.

Move More
Find movement that fits your life, such as a walk, a stretch or dancing while you cook. Every bit of activity counts and it all supports your heart and mind. Move for joy, not just for results.

Smart Tip:Adults should get 150 minutes of moderate physical activity (or 75 minutes of vigorous activity) per week. Kids should aim for 60 minutes every day, including play and structured activities.

Sleep Well
Rest is a foundation of good health, not a reward. Protect your bedtime routine and give your body the recovery it deserves. Notice how good sleep makes everything else easier.

Smart Tip: Most adults need 7-9 hours of sleep each night. Children require more. Adequate sleep promotes healing, improves brain function and reduces the risk for chronic diseases.

Manage Stress
Check in with yourself regularly, both mentally and emotionally. Create simple moments to pause, breathe, laugh or step outside. Connection, kindness and calm all support a healthy heart.

Smart Tip:The first step to stress management is awareness. Step “away from yourself” for a moment. Objectively ask yourself, “Is my stress level too high?” If so, look at what might be causing that stress.

Ideas for Incremental Changes

  • Dedicate 15 minutes at the beginning or end of the day to focus on self-care, whether it’s unwinding with some music, writing down your goals or reflecting on the highlights of the day.
  • Aim to add an extra serving of fruits or veggies each day, such as creating a savory veggie omelet or exploring new smoothie blends that let you pack in the produce on the go.
  • Give your cabinets a quick update and put the smaller plates front and center. When you use a smaller plate, you can fill it while still sticking to recommended serving sizes.
  • If you’re not a fan of the gym, think about how your hobbies can play a role in your physical activity. Even gardening counts as physical activity, so get creative to get moving with an activity you truly enjoy.
  • Establish a bedtime routine that allows you to ease into sleep more easily. Once you feel the impact of better-quality rest, you may find yourself more motivated to make a regular bedtime a priority.

Photos courtesy of Shutterstock

    

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SOURCE:

American Heart Association

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Lifestyle

How to Practice Thoughtful Grief Etiquette Online

Grief experts advise caution in sharing condolences and loss-related information on social media, emphasizing the importance of prioritizing the grieving family’s needs. Thoughtful posting practices include waiting for family approval, reaching out privately first, and avoiding speculation about the cause of death. Compassionate communication is essential in these sensitive situations.

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Last Updated on March 31, 2026 by Daily News Staff

How to Practice Thoughtful Grief Etiquette Online

(Feature Impact) News of a death can spread online in seconds – often before families have notified close family members privately. That’s why grief experts urge people to rethink how they share condolences, tributes and loss-related information on social media, particularly during the winter months when grief can feel especially isolating.

“Grief etiquette is about putting the needs of the grieving family first, not our urge to say something publicly,” said Dr. Camelia L. Clarke, National Funeral Directors Association (NFDA) spokesperson, funeral director and grief educator with nearly 30 years of experience. “Just because information can be shared instantly doesn’t mean it should be.”

Social media has become a common place for sharing condolences, tributes and memories. However, grief experts caution that, without thoughtful consideration, online posts can unintentionally cause harm. Knowing when to post, what to say and when to remain silent can make a meaningful difference for families experiencing loss.

Consider this advice from the experts at the NFDA.

Grief Etiquette in the Digital Age

Grief etiquette refers to the unspoken guidelines for how individuals acknowledge death, loss and mourning, particularly online.

According to Clarke, one of the most important principles is restraint.

“When a death is shared online too quickly, families can feel exposed and overwhelmed at a moment when they’re still processing the loss themselves,” she said. “Waiting is an act of compassion.”

Best Practices for Posting About Loss Online

As social media continues to play a role in modern mourning, grief professionals encourage users to pause before posting and consider a few key guidelines:

  • Let the family lead. Don’t post about a death until the immediate family has made it public.
  • Ask permission. Obtain consent before sharing photos, stories or tributes.
  • Reach out privately first. A direct message, call or handwritten note can be more meaningful than a public comment.
  • Avoid speculation. Don’t ask about or share details regarding the cause of death.
  • Offer ongoing support. Grief extends far beyond the first days or weeks after a loss.

What to Say (and Avoid)

When expressing condolences online, experts recommend simplicity, sincerity and sensitivity. Messages that acknowledge loss without attempting to explain or minimize it are often the most supportive.

Helpful phrases include:

  • “I’m sorry for your loss.”
  • “Thinking of you and your family.”
  • “I’m here if you want to talk or need anything.”

By contrast, well-meaning cliches can unintentionally cause harm. Phrases such as “They’re in a better place” or “Everything happens for a reason” may reflect the speaker’s beliefs, but they can feel dismissive to someone grieving.

“Grieving people don’t need answers – they need presence,” Clarke said. “Listening matters more than saying the perfect thing.”

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Resources for Families and Friends

As digital spaces continue to shape how people communicate during life’s most difficult moments, experts agree empathy, patience and respect remain timeless.

“Grief is deeply personal,” Clarke said. “When we slow down and lead with compassion, we honor both the person who has died and those who are left to grieve.”

To learn more about how to support a grieving person and access free, expert-reviewed resources for navigating grief, expressing condolences and supporting loved ones before, during and after a loss, visit RememberingALife.com, an initiative of the NFDA.

Photo courtesy of Shutterstock

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SOURCE:

National Funeral Directors Association

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Health

4 Simple Ways to Keep Allergy Season at Bay

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Last Updated on March 27, 2026 by Daily News Staff

indoor air quality. Allergy Season

4 Simple Ways to Keep Allergy Season at Bay

(Family Features) With warmer outdoor temperatures, many homeowners suffer through longer allergy seasons. In fact, allergy days have increased by 20 days, according to a study conducted by the National Academy of Sciences.

Being aware of air quality indexes and limiting time outdoors can lessen exposure to airborne pollutants, but indoor air quality is also a concern. In a report from the U.S. Environmental Protection Agency, levels of indoor pollutants can be 2-5 times higher than outdoor air.

People spend nearly two-thirds of their lives at home, according to Carrier, which developed its Healthy Homes Program to help homeowners create indoor environments that optimize health and wellness. Consider these ways you can combat pollutants where it matters most: your home’s indoor air quality.

Reduce Indoor Pollutants
Your home has multiple sources of indoor air pollutants. While avoiding these pollutants altogether is often the best solution, it’s not always possible. However, there are a few ways you can reduce exposure in your home: ban indoor smoking; turn on exhaust fans when cooking; minimize or remove “soft” pollutant gathering surfaces such as decorative pillows, stuffed animals and decorative throws; and regularly clean all heating and air conditioner filters as required or according to manufacturer specifications.

Add Air Purifiers to Your HVAC Unit
While air purifiers don’t treat allergies, they can help filter out allergens that can cause allergy symptoms. Homeowners might consider purifiers that are highly effective at capturing particulate. For example, the Carrier Infinity air purifier is a whole-home heating and cooling system. It not only captures 95% of particles in micron size range 1.0-3.0, but also inactivates 99% of select airborne germs and viruses that flow through the HVAC system and become trapped in the MERV 15 filter. The purifier has also demonstrated effectiveness against the murine coronavirus – similar to the human novel coronavirus (SARS-CoV-2) that causes COVID-19 – based on third-party testing, as well as the type of viruses that cause the common cold, streptococcus pyogenes and influenza.

Control Humidity
Many people know high humidity can cause discomfort in hot temperatures, but there are other potentially negative impacts. According to the Centers for Disease Control and Prevention, dust mites thrive in 70-80% humidity and temperatures between 75-85 F. Additionally, high humidity can provide an environment conducive to mold growth, which is why maintaining relative indoor humidity between 40-60% is recommended to keep dust mites and mold at bay. To help control humidity, run the air conditioner when it’s hot and humid and consider using whole-home humidifiers and dehumidifiers that allow for specific settings for moisture control.

Consider Room Air Purifiers for Individual Spaces
Room air purifiers are portable and highly efficient solutions for smaller spaces such as nurseries, bedrooms, home gyms and added rooms. One example is the Carrier Smart Room Air Purifier with a built-in indoor air quality monitor that includes three levels of filtration, including an activated carbon filter to capture odors. The attached, color-coded air quality monitor measures and displays pollutant levels so homeowners can be informed and aware of the quality of their indoor air, giving them the ability to maintain next-level comfort while breathing cleaner air.

Creating your ideal home environment is more than just controlling the temperature. Your home’s air should be filtered and pollutants limited to minimize allergy triggers and promote good indoor air quality.

To learn more and get an estimate on a solution that’s right for you, visit carrier.com/residential.

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SOURCE:
Carrier

https://stmdailynews.com/category/lifestyle/

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Author

  • Rod Washington

    Rod: A creative force, blending words, images, and flavors. Blogger, writer, filmmaker, and photographer. Cooking enthusiast with a sci-fi vision. Passionate about his upcoming series and dedicated to TNC Network. Partnered with Rebecca Washington for a shared journey of love and art.

    View all posts
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